mycobacterium avium complex
Just an update - Saw my Pulmonolgist this week who says my lungs are "alot worse" and that I need to be on antibiotics. (ID doc took me off all antibiotics in September because of severe side effects). Pul. doc. says he'll contact ID doc, but no one gets back with me with any instructions. I can't afford to go to other states to be assessed for this disease and treatment so I just continue to "hang in there" and have appt. for follow-up with Pul. doc. next Feb. Have started to lose weight again and have dry cough all the time, and extreme fatigue. This is all very frustrating. Thanks for letting me vent. All of you take care.