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Old 02-04-2017, 10:09 PM   #1
Redheavens
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Help

Two years ago I developed a rash on the majority of my body from my ankles to my shoulders mainly on my joints. My bloodwork came back with Ana of 1:640 homogeneous. Further auto immune testing all in normal ranges or negative. The rash took 7 months to go away. I get ulcers in my mouth and nose. Have a family history of lupus, raynauds and thyriod disorders. Fast forward to today I have been diagnosed with raynauds and essential tremors and my Ana came back 1:1280 with a speckled pattern and my family doctor has not suggested I should get further testing done. I'm thinking I should go to a rheumatologist to have more tests done.. I have multiple ulcers in my mouth right and I'm always freaking tired .. my raynauds is flaring up a lot also.. I have trouble falling asleep and or staying asleep also.. even when I do only wake up once a night I'm still tired.. I have horrible digestive issues and can only have normal function by taking probiotics.

Isn't an Ana of 1:1280 high ?? Should I be worried??

Last edited by Redheavens; 02-04-2017 at 10:13 PM.

 
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Old 02-05-2017, 04:16 AM   #2
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Re: Help

The bod hero gdaw

Last edited by Redheavens; 02-05-2017 at 04:17 AM.

 
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Old 02-05-2017, 08:31 AM   #3
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Re: Help

Hi & welcome. I'm just a patient, but I think you should see a rheumatologist, definitely. Have you read the sticky posts = permanent info posts? They're the informational posts located just above the user threads. Because you seem to match on at least several lupus criteria---ANA, plus some sort of rash as yet to be identified, plus oral ulcers that maybe are the kind seen in lupus---at this juncture, a rheumatologist would be a much better bet than a PCP, no matter how good. That's imo, of course.

What does your rash look & feel like? (Just curious.) There's a "sticky" on rashes you might read, too. I had the SCLE annular form, and boy oh boy, none of my local doctors, including 8+ derms, recognized it. So that's another argument for seeing a specialist---better odds of learning if your rash is lupus-specific: good rheums know which derms know these rashes.

Lupus can co-exist with other conditions, and it very often mimics other conditions, too. For example, having Raynaud's doesn't rule out having lupus, and thyroid conditions could accompany either/or. So you want a specialist well-versed in all of the "candidates".

Can you see a rheum without a referral? Looking forward to hearing more. Meanwhile, sending best wishes, Vee

 
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Old 02-05-2017, 01:36 PM   #4
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Re: Help

Yes, I can see a rheumatologist without a referral and will be calling tomorrow for sure. Thank you for your response and makes me feel less crazy. I'll keep you posted.

Last edited by Redheavens; 02-05-2017 at 01:37 PM.

 
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Old 02-05-2017, 03:38 PM   #5
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Re: Help

You're not crazy, not one bit. I'm glad you're pushing forward. (I, clueless for years, didn't even realize I should consult a rheum.) Let us know what happens, OK? We're here any time you feel like chatting. Good luck!

 
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