Nice to have you back with us
Wow, you have sure had Lupus for awhile- I am sure that your experience with it has helped so many people. I was just diagnosed in August of this year, but I have had Lupus since 1992. I have had quite a journey, but I am glad that I can help others! I try and use the knowledge that i have acquired to help other people out there searching for a diagnosis. There are so many!!
You said that you have had lots of CNS complications with your Lupus. Have you been tested for Antiphospholipid Syndrome (Hughes Syndrome)? It is a condition that can go with Lupus that makes the blood sticky. Some symptoms are migraine, history of stroke/TIA (mini stroke), DVT or leg clot, miscarraige etc. I have it, and I tell you that once my blood was thinned out I am a new person! The blood tests are the anticardiolipin and the Lupus anticoagulant. It's worth getting tested for, many doctors do the test but when its positive they dont do anything about it! Anyway- welcome back to our "hovel"!! Take care,