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Old 11-24-2003, 06:35 AM   #1
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Join Date: Jun 2002
Location: New Jersey, USA
Posts: 630
PINKYPRISCILLA HB User
Cool Going to take Mom to new RHEUMY tomorrow

Hello there

Well it is finally here they squeezed us in tomorrow
at 11:00am we got lucky because they just got
the news that he was going to come in one day this
week as he was going to take off the whole week.

Please give me some input on some important
questions to ask ????????????? especially on
her recent ana blood tests .............thanks...

She has been feeling a lot better because she
increased her prednisone dose.

Thanks

PinkyP

 
Old 11-24-2003, 07:07 AM   #2
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Join Date: May 2003
Location: Maple Valley, WA, USA
Posts: 11
Carlaschill HB User
Re: Going to take Mom to new RHEUMY tomorrow

Quote:
Originally Posted by PINKYPRISCILLA
Hello there

Well it is finally here they squeezed us in tomorrow
at 11:00am we got lucky because they just got
the news that he was going to come in one day this
week as he was going to take off the whole week.

Please give me some input on some important
questions to ask ????????????? especially on
her recent ana blood tests .............thanks...

She has been feeling a lot better because she
increased her prednisone dose.

Thanks

PinkyP
Hi,
I just wanted to tell you about a new site I found. I have Sjorgens and this site has helped me.[url]http://www.sjsworld.org/[/url]
good luck,
Carla

 
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Old 11-24-2003, 08:29 AM   #3
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Join Date: Jun 2002
Location: New Jersey, USA
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PINKYPRISCILLA HB User
Re: Going to take Mom to new RHEUMY tomorrow

Quote:
Originally Posted by Carlaschill
Hi,
I just wanted to tell you about a new site I found. I have Sjorgens and this site has helped me.[url]http://www.sjsworld.org/[/url]
good luck,
Carla

Hi Thanks for the info. Do you have it
under control? what meds do you use?
do you have lupus also?

 
Old 11-24-2003, 09:27 AM   #4
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Location: Maple Valley, WA, USA
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Carlaschill HB User
Re: Going to take Mom to new RHEUMY tomorrow

Quote:
Originally Posted by PINKYPRISCILLA
Hi Thanks for the info. Do you have it
under control? what meds do you use?
do you have lupus also?
Hi,
Your welcome,
I'm on plaqunil(sp) my rash has gone away, but I'm really sore. My wrists are the worst and my knee's are not so good either. I'm always tired, somedays worst than others. But everything I read doesn't mention anything except dry eyes and mouth. They make this sound like such a mild thing. Wrong... The new site I sent you tells it more how I feel. I thought that I had Lupus because of all my aches and pains. I din't relize you can feel this bad when all you have is SJORGENS....So far it seems to be the worst in my joints. Well I hope this new site helps your mom and me...I still have lots questions too.
have a nice day,
Carla

 
Old 11-24-2003, 10:16 AM   #5
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Join Date: Jun 2002
Location: New Jersey, USA
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PINKYPRISCILLA HB User
Re: Going to take Mom to new RHEUMY tomorrow

Quote:
Originally Posted by Carlaschill
Hi,
Your welcome,
I'm on plaqunil(sp) my rash has gone away, but I'm really sore. My wrists are the worst and my knee's are not so good either. I'm always tired, somedays worst than others. But everything I read doesn't mention anything except dry eyes and mouth. They make this sound like such a mild thing. Wrong... The new site I sent you tells it more how I feel. I thought that I had Lupus because of all my aches and pains. I din't relize you can feel this bad when all you have is SJORGENS....So far it seems to be the worst in my joints. Well I hope this new site helps your mom and me...I still have lots questions too.
have a nice day,
Carla
HELLO

Yes my mom has a lot of aches and pains however she
has sjroden's secondary to lupus and rheumatoid
arthritis which gives her a double whammy. She is on
plaquenil now for a number of years but still has a lot of
symptoms.
Her ana antibody tests were pretty much abnormal
How is yours?

Last edited by PINKYPRISCILLA; 11-24-2003 at 10:17 AM.

 
Old 11-24-2003, 10:38 AM   #6
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Join Date: May 2003
Location: Maple Valley, WA, USA
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Carlaschill HB User
Re: Going to take Mom to new RHEUMY tomorrow

Quote:
Originally Posted by PINKYPRISCILLA
HELLO

Yes my mom has a lot of aches and pains however she
has sjroden's secondary to lupus and rheumatoid
arthritis which gives her a double whammy. She is on
plaquenil now for a number of years but still has a lot of
symptoms.
Her ana antibody tests were pretty much abnormal
How is yours?
Hi, The test showed Sjorgens only, but she said Lupus isn't out of the question.
Here is another group that is really helpful. I go to the general discusion.[url]http://boards.*****.com/topic.asp?topic_id=86[/url]
These guys seem to have lots of answers.....
Carla

 
Old 11-24-2003, 01:26 PM   #7
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Join Date: Jan 2003
Posts: 665
AngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB User
Re: Going to take Mom to new RHEUMY tomorrow

Hey Deb,

Just pray LOTS before going, and maybe write down the stuff that you know that has happened in the last while here (since your mom started into this flare). Also, make sure to take that recent blood work with you.. it will be important for sure. Try and relax, I bet that this one will be great!! Give your mom a BIG hug from me!

Luv, Dana

 
Old 11-24-2003, 02:02 PM   #8
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Join Date: Jun 2002
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PINKYPRISCILLA HB User
Re: Going to take Mom to new RHEUMY tomorrow

Quote:
Originally Posted by AngelicBrat
Hey Deb,

Just pray LOTS before going, and maybe write down the stuff that you know that has happened in the last while here (since your mom started into this flare). Also, make sure to take that recent blood work with you.. it will be important for sure. Try and relax, I bet that this one will be great!! Give your mom a BIG hug from me!

Luv, Dana
Thanks Dana

Im kinda anxious
I will try to relax and pray tonight, I will let you know how it goes.
Thanks for the inspiration.

Luv, Pinky

 
Old 11-25-2003, 11:04 PM   #9
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Join Date: Jan 2003
Posts: 665
AngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB User
Re: Going to take Mom to new RHEUMY tomorrow

Hey Deb,

How did the Rheumy appointment go? I am anxious to hear.. hope that you guys made out okay!! Hopefully talk to you soon,

~Luv, Dana

 
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