It's no problem at all! That's why I am here, and I am so glad that you are doing okay after that awful appt
Since I have been so sick, I had to move home to my parents about a year and a half ago now.. Its been hard on me because normally I am so independant, but I am so glad that I can come home (I am 27). My parents are really good about me and my illness, but I don't think my mom really "gets it" sometimes. She is a nurse, but when I try and tell her how I am feeling, its almost like sometimes she tunes me out. I try very hard to be a positive person but I need to vent and cry too sometimes. Mom understands that, and is there for me but when I say that "It feels like I have the flu everyday" she doesn't get it until she has the flu. Then I say "That is how I feel all the time" and I think she gets it. Lupus is a very personal disease hey? People don't understand because our physical appearance doesn't change that much. we do get more pale, circles around the eyes and stuff like that but we look healthier than we are! When I run into people that haven't seen me in a couple of years they dont recognize me because I don't look like ME. But when I used to go to the Rheumatologist (before I was diagnosed) they told me I looked too healthy to have Lupus!
What you can do with hubby is buy a book for him to read about Lupus and what its like. One good one is "Lupus, everything you need to know" by Robert Lahita and Robert H. Phillips. It's worded in easy terms and is really good reading. Another one is "The Lupus Book- A guide for patients and their families" By Daniel Wallace. They are both excellent, and one lady from this board has bought the latter one. Perhaps if your hubby read about Lupus he would better understand it? And you can invite him on the net to look for information and also to chat with other families. It could also be that he is worried about you and doesn't want to talk about it. Sometimes people find it easiest to "ignore" that we are sick, because they are very worried and dont want to alarm us. He probably wants everything to be the way it was before you got sick, and that is why he wants you to go out with him. Its so hard on them.. trust me. I know that my family lives worrying about me, I am sure they worry more than I do!!
Anyway.. you take care and the next step is a new Rheumy! hehe
~Luv, Dana (Angelic)