I'm a newbie here, my first post response...
I have had Raynaud's for a couple of years now, with Trigeminal Neuralgia also and CFS & Fibro for much longer, though only diagnosed with SLE last 2003. I also have 'bouts of celiac disease' - I say bouts because it depends on my diet then I get bouted! *chuckles* so it was a good pointer shared by both angelic and marionf to consider as being possibly related to? And also possibly connected through any medications.
Talk to your caregiver, Dr, and/or Specialist again and again (persistance pays)about the bloating to see if they can help pinpoint the cause and possibly ease the effects as soon as possible. Also ask about the medications your on and possible side effects?
I am on a low dose of prednisolone which did not give me immediate bloating effects, however I also am on anti-depressants (Avanza) to help with the anxiety I experienced immediately alongside the diagnosis. I had to change from Zoloft, and after a week I began experiencing terrible bloating in my stomach. It is not certain as yet to which medication is having such an effect as both are listed with such.
I felt like I was being pumped up like a balloon, AND you could see it *phewey* - no fun to say the least! I felt so bloated that I thought I would up and
away from all that air inside me!
I've always had a shocking metabolism through an abusive diet.
Raising my 4 teen age sons, I had a tendency to put everyone else high on the list of 'must feed' and neglected to apply that to myself, but recently I have had the most humungus appetite - eating, no correction - devouring every edible thing in site!
Being aware of your diet can help also. Take note or even better begin a journal of what foods you are eating, what time of day and of any effects or change in health immediately thereafter. You may find a connection to certain food groups that you can take action with. Recording your health history is also very helpful to give copies to your Dr and/or Specialists and even for your own references.
I have met some lupus folks who have adverse reactions to bean sprouts, capsicums, seafoods etc, to myself finding out that my love of HOT spicy flavoured foods were enough to bring on a lupus flare!
- have since eliminated such from my 'once upon a time regular food-fix!'
I live in a very hot tropical climate here and drinking plenty of water was something I really loved doing, other than for the necessity to not dehydrate! But I have also noticed that since taking both the meds I'm on and drinking tonnes of water, that I experience this bloating feeling more over? So rather than guzzle it down like I used to it, I spread out the water in-take in more moderate amounts. Im not sure why that is so? Perhaps a water and medicine reaction when combined causes bloating? Perhaps there is too much water for the kidneys to process and it stores it in a bloated effect until it gradually gets it all processed? (just pondering out aloud here) Hows your water intake?
As I am gluten intolerant also, this means I have to limit if not eliminate entirely the amount of wheat I eat and/or products that contain traces of wheat etc. Its been some years now since I found out that I had Celiac Disease, as well as 2 of my sons (hereditary plays a role here for some) and as I began researching what had gluten in it, I was
- ok, what doesn't then?! There are the most obvious products - cereals containing wheat, bread, cakes, desserts and then the not so obvious, soya sauce to certain sweets and candies to alcohol and beverages.
You could ask your Specialist or Dr to be checked for gluten intolerance. The most important factor in this case is being savvy with your diet, depending on one's level of effects to how you can help improve upon. You may find cutting back helps to having to cut back entirely on gluten products.
Celiac Disease can be associated to SLE.
My eldest sons Celiac is far more complicated and also involving lactose intolerance, we have had fun altering his diet at the best of times. But he quickly appreciates the immediate improvements.
Don't give up in your quest to know, eventually with your persistence, you will find out what it is and likely be able to make immediate changes and regain a sense of well-being in doing so.