It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Lupus Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 03-04-2004, 09:23 AM   #1
Senior Member
(female)
 
Join Date: Jan 2004
Posts: 181
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 1 Time in 1 Post
hypokelly HB User
so scared...... help me!!!!

Hello, I have not posted here for awhile but visit quite often,
I have been running back and forth to doc for awhile, trying to find out what is wrong with me.Don't even know if I should be posting in LUPUS, but Angelica knew alot about APS.
BRIEF HISTORY:
fatigue,sore joints, muscles,SOB, tremors in hands,numbness in some extremities,some loss of bladder control, poor memory & concentration,chest pain(recently diagnosed prolasped valve),blurred vision that comes & goes,eyes twitching,occasional swollen glands,
pneumonia,painful periods with lots of large clots(SORRY), oh yeah and FATIGUE.
Doc has done blood tests, the only problem was ESR 28
echocadigram,holter monitor, lupus bld work came back negative
made MRI appt, for mid March to rule out MS.She also put me on effexxor as she worries I m depressed , and detrol for my bladder.
Now, what is freaking me out is she sent me for a CT scan and found
a "PROMENT BULGE".
So now she is sending me to a neurologist for a possible cerebral angiogram!!!!!!!!
"BULGE" what does this mean????
She says" its not tumor its a bulge,possible clot or anyereseum"
Well, the rest of the appt. is a blur, blah blah blah and then sent me home to await for a appt with the neuro.
Am I suppose to act normal, go to work(physical demanding job)
I have phoned back and talked with the receptionist to ask doc before she goes for her vacation, because I have not slept and I'm freacking out.
thanks for all your support
kelly

 
Sponsors Lightbulb
   
Old 03-04-2004, 05:28 PM   #2
Inactive
 
Join Date: Dec 2002
Posts: 435
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Sampy123 HB User
Re: so scared...... help me!!!!

Kelly,
You really should be tested for antiphospholipid antibody syndrome. It's a simple bloodtest. Alot of your symptoms fall right into that category. I'd ask your dr. to test you for this asap. Be sure your neurologist doesn't throw you right into the MS category. APS mimics it like you can't believe. I am concerned that because you have a bulge, it could be a clot and you probably need to get on real aspirin or blood thinners, if that's the case. Can you call your dr? I wouldn't mess around with an aneurism, that certainly is cause for concern and immediate intervention. Keep us posted. Shari

 
Old 03-04-2004, 11:09 PM   #3
Senior Veteran
(female)
 
Join Date: Jan 2003
Posts: 666
Hugs: 0
Hugged 2 Times in 1 Post
Thanks: 0
Thanked 10 Times in 4 Posts
AngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB User
Re: so scared...... help me!!!!

Hi Kelly,

When are you scheduled for the Neurologist appt? If it is not soon, get your GP to send an ASAP consult NOW to get you in soon. My bet is that this is a clot- and that it could be from APS! Have they tested you for it yet? If not, in the meantime get your doctor to test you for APS!!! Please try to stay calm, it is so scary I know.. See what your GP thinks and see if you can get in right away!

~Luv, Angelic

 
Old 03-05-2004, 02:50 PM   #4
Senior Member
(female)
 
Join Date: Jan 2004
Posts: 181
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 1 Time in 1 Post
hypokelly HB User
Re: so scared...... help me!!!!

Quote:
Originally Posted by AngelicBrat
Hi Kelly,

When are you scheduled for the Neurologist appt? If it is not soon, get your GP to send an ASAP consult NOW to get you in soon. My bet is that this is a clot- and that it could be from APS! Have they tested you for it yet? If not, in the meantime get your doctor to test you for APS!!! Please try to stay calm, it is so scary I know.. See what your GP thinks and see if you can get in right away!

~Luv, Angelic
Hello, thanks for responding Shari and Angelic

Got a hold of Doc yesterday before she went for vacation,she said just act normal, go to work,etc.(easy for her to say)
Went to work today but felt a little dizzy, had not felt like that before, wondered if it was just mind over matter.
Anyway,receptionist left a message that could not get an appt until May!!!!!!!!!
can't get a hold of her now as she said she will be in and out of the office while doc is on vacation.
kelly

 
Old 03-05-2004, 03:28 PM   #5
Senior Veteran
(female)
 
Join Date: Jan 2003
Posts: 666
Hugs: 0
Hugged 2 Times in 1 Post
Thanks: 0
Thanked 10 Times in 4 Posts
AngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB User
Re: so scared...... help me!!!!

Hi Kelly,

That is RIDICULOUS!!!!!!!!! You need to be seen NOW! Please try and stand your ground.. perhaps you could go through the ER during the day to see if someone can read those results. Just complain of a headache and they have to consult you out because of your abnormal MRI! MAY is way too far. Sheesh!!!! That makes me so darn mad!! I think that this is a clot, and that you need the tests for Antiphospholipid Syndrome ASAP before you have something awful happen. I don't want to scare you- but you need to get fixed soon before they go "oops!". I will pray about this and everything will be revealed Kelly. I don't know if you are a person of faith- but I am and I will pray no matter what Take care and talk to you soon.

~Luv, Angelic

 
Closed Thread




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off











Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Lupus

    VeeJ (78), AngelicBrat (8), neveragain444 (5), brooklyngirl (4), paperbgprinces (3), gdiluca (3), ksp (3), Bryansmom (2), teeha (2), GoodDog (2)

    Site Wide Totals

    thanbey (581), janewhite1 (526), BlueSkies14 (511), SpineAZ (483), DGabriel10 (463), mscat40 (419), tetonteri66 (418), jennybyc (399), sammy64 (388), jgrangran (357)

    All times are GMT -7. The time now is 01:08 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.