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Old 01-11-2005, 05:36 PM   #1
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jerseygirl65 HB User
New Here!!! HI...

Hi there, I'm new to this site or at least I think I am, I sign up for many and can't always remember or don't have the energy to sit on line...Anywhooooo, I was dx'd with SLE in April of 2004. A severe facial skin rash and swollen glands led me into the ER, where the doc said I had been biten by a spider and to go home. Nice, huh? I knew that wasn't it. I looked into docs myself and luckily I have a great PPO so off I went to see a dermy and a rhuemy. The dermy took a nice chunk sample outta my face by my ear area....and of course all the tests from both docs came back with the lovely dx of SLE. So, as time has passed. the rash has cleared leaving scars and red marks all over my face. I have been on Plaquniel, prednisone and now I just started Methotrexate 3 weeks ago. I am still sooooooooooooo tired ALL THE TIME. I hate it. I am normally very hyper and get alot done during the days. I can't seem to do anything lately. My doc pulled me off work until I'm done with the Metho...or at least until I can go back and feel ok doing a "whole 8 hours". Anyways...just wanted to say HI and hope you all are feeling well and to keep your chins up. Lord knows I try to keep all mine up that I've gained through the meds. Thanks for listening to my story
Leesa

 
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Old 01-11-2005, 06:48 PM   #2
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VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: New Here!!! HI...

Dear Leesa,

Welcome to this very select ( ) group. I hope you sign in, chip in & weigh in often.

About your dr. suggesting you not work until you get through the course of methotrexate---maybe not the worst thing in the world. And I know "hyper", as I was that way before I became so tired and rashy (etc.) and understood I REALLY had a problem. People are so sick this year---everyone I know has had something by now. It's GERMY out there!

Anyway, I'm glad your drs. had answers and treatment for you. Hang in there & take good care. Vee (just north of NYC, meaning ICE STORM, ANYONE?)

 
Old 01-11-2005, 11:18 PM   #3
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UT_mom HB User
Re: New Here!!! HI...

Welcome Leesa!!
So sorry to hear of your plight but very glad to have you here!! I'm still in mystery land as far as diagnosis goes but that doesn't mean I've stopped looking and learning. Fatigue is by far my worst complaint, I feel like the daily pain and the other "stuff" that comes and goes I can deal with but you feel like your life just gets ripped out from underneath you when you're just too tired to do the smallest thing. Hang in there and as Vee phrased it, please do "chip in" often and let us know how you're doing! My best to you!
Shawnee
(I live in Cedar CIty, Utah and 50 miles South of me 9 brand new homes have been swallowed up by flooding rivers and other waters, it is just amazing footage if I've ever seen any and I just can't yet grasp that it is so close to home)

 
Old 01-12-2005, 07:27 AM   #4
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jerseygirl65 HB User
Re: New Here!!! HI...

hi there again, can someone help me figure out how to reply to each post..do i click on "quote" or the "quick reply" and if i do "quick reply" which post does it answer? HELP..im mental!!!

Last edited by jerseygirl65; 01-12-2005 at 07:27 AM. Reason: spelling

 
Old 01-12-2005, 07:33 AM   #5
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jerseygirl65 HB User
Re: New Here!!! HI...

I dont know if im responding properly to these posts..i guess we'll see..
Thanks for your welcome and reading my post...
I've been off work for quite some time now due to a knee surgery I had in October...it's been nice being off..and learning how to just relax, you know?
It is germy out there..make sure to stay away from those people.. Take care
Leesa (San Diego, CA)

Quote:
Originally Posted by VeeJ
Dear Leesa,

Welcome to this very select ( ) group. I hope you sign in, chip in & weigh in often.

About your dr. suggesting you not work until you get through the course of methotrexate---maybe not the worst thing in the world. And I know "hyper", as I was that way before I became so tired and rashy (etc.) and understood I REALLY had a problem. People are so sick this year---everyone I know has had something by now. It's GERMY out there!

Anyway, I'm glad your drs. had answers and treatment for you. Hang in there & take good care. Vee (just north of NYC, meaning ICE STORM, ANYONE?)

 
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