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Old 05-22-2005, 11:44 PM   #1
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angels_among_us HB User
help

My new lupus dr dont believe in fighting the pain with pain meds. but i am in pain. What kind of a dr should i go to? I dont want to be on heavy pain meds just something to take the ease off

Last edited by angels_among_us; 10-09-2005 at 03:54 AM.

 
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Old 05-23-2005, 01:18 AM   #2
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oeee HB User
Re: help

my advice...most rheumatologists don't like to give out pain meds....but if you bother them enough...they normally will. Email your rheumatologist...explain what the pain is doing to you...for me..it gave me nightmares, i couldn't sit still, i lost my ability to concentrate, became very depressed, argumentative, and reverted to a childlike state...if need be, cry. Have a familiy member call the doctor and explain the situation...but be descriptive........if you are desperate...you need to communicate that...you also need to appear as though you are doing everything possible to help yourself...and despite this...you are not getting any relief...doctors aren't mind readers...and sometimes if you really want help, you have to make a fuss. Also- get in to see a psychiatrist...explain the situation to them..they can prescribe pain meds or call your physician and tell him that he should prescribe them to you. good luck!! I now take darvocet and neurontin daily...and am more comfortable than i was...pain meds aren't the solution..but they do help!

 
Old 05-23-2005, 05:28 AM   #3
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Re: help

My dear angels-a-u,

No pain meds for pain? What a very odd stance to take. I personally have never heard such a thing. Here in the UK, discussions on controlling the pain is of paramount importance, and if we get a good doctor we can normally decide between us what our best course of pain control might be.

I can understand to a certain degree if the doctor needs to determine exactly what is going on, but if you already have a lupus diagnosis and he knows that, then what is his thinking? My feeling is that he has to have a very good reason why not, and I would want to know the reason why. The statement he made might be because he might not yet be certain of what exactly is going on, but nevertheless you should be free to go to your GP and ask his advice on having something/anything to get you through until your lupus doctor has all of your test results and so on to work with.

Do you have anyone who can speak on your behalf? I am not saying that you can't talk for yourself, what I mean is that if someone else speaks to him also, then he will recognise the situation as being very, very difficult for you.

This is not something you have to put up with. You are in so much pain and need some relief. Is there any chance that you might be able to change your lupus specialist? If you are unhappy with the treatment after such a short time, maybe it would be better for you to go elsewhere. This is only something I personally would do.

I do so hope you can sort something out soon and I really feel for you. Please take care.

goldenwings
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I am not a medical doctor, I only speak from my own experience of the illnesses I discuss here.

Last edited by goldenwings; 05-23-2005 at 05:30 AM.

 
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