I had my first flare up of lupus 10 years ago. However, after taking plaquenil, I haven't had a flare up since. My lupus mostly effects my joints. Anyhow, I had a perfect pregnancy (I also have the anti-ro antibody and went to the Hospital for Sick Kids for many echocardiograms). When Jack turned 4 months,my flare up began again.....hands and feet, and a bit in my jaw. I think my lack of sleep etc... triggered it...who knows.
Now that Jack weighs 23 lbs...I'm finding it soooo hard to carry him, change him etc.... I'm back on Plaquenil, but also now on Naproxen and Methadextrate. Things have gotten a little better, but I find my hands are just soooo sore. I don't have family in the area and my husband works late hours. My specialist (whom I love) recently increased my methadextrate to 10 pills rather than just 6.
Have any of you been through this? Any suggestions?
I don't know how helpful I can be but I will try. If you can take gravity out of the picture on truly bad days. If your baby is crying make sure u are sitting and slide him into your lap. I know this does nothing for the crib except to get him as close to you as possible before you lift Jack. I started spending more time in the floor or play room with my oldest son, because he was very heavy, he never lost a single ounce of weight. I also dressed him in overalls quite a bit, there is a lot to get a grip on baby osh k'osh. They were more for my benefit, I put my arm through the back of the straps to reinforce my grip on Steven. I also used myoflex, or blue stuff I rub it into my hands, and slid cotton gloves on, and wrapped my hands in warm towel from the dryer, skip the dryer part if you use blue stuff(actual name), it makes the heat too intense. You might try a teenage helper, or a part-time sitter. Just to give your joints some ease, so he can be handed to you. I never did it , but I know people who did, and it worked for them. Hopefully some others on here will give you better advice, my problem was my grip and lower back spasms, I had to buy a support belt to help reinforce my lower back. Look for compression gloves also, I don't know if that is the proper name, but they do work to keep your circualtion going and cut down on soreness. I don't know anything that helps the shaking in your hands if you are troubled by that. I wish you the best of luck,a nd congratualtion on having what sounds like a very healthy baby boy!
I can't help a lot with the exact combination of Lupus and small children; I was dx'd later in my life. However, I do have 5 children; including twins; so I have been in the situation where I was unable to lift children. For example I was on bedrest when I was pg with the twins and couldn't lift the older children.
ALWAYS lower the side of the crib before lifting the baby out and make quick, short "horizontal" transitions. Like from the crib to a changing table. Try to make more horizontal transfers rather than bending up and down.
Don't feel silly using the stroller in the house, or a rolling high chair. I had a rolling high chair(s) where the chair adjusted up and down; so it could be adjusted to whatever destination "height" I was transferring the baby to.
Sit down on the sofa, chair, bed and "help" the baby up from the floor rather than deadlifting. Also, lifting in steps, such as floor to chair; then chair to crib...
Also, when you just have to rest and the baby won't; try putting a playpen in the room with you and let the baby play safely while you are lying down nearby. You'll relax and reduce jumping up and down even if you don't get to snooze entirely.
I do hope you start feeling better soon. Be sure you allow yourself to take care of yourself as much as you take care of your little guy. You both need YOU.
"Be careful about reading health books, you may die of a misprint." ~~Mark Twain