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Old 12-05-2005, 12:54 AM   #1
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long time since I have been here

I have surgery this comming week for a possiable hernia and Scar endometriosis.. I am pretty scared about the pain after surgery.I also have Fm. How do I address the surgeon about my fear of the pain after surgery? He did say recovery would be longer due to the Lupus but that is basically all.
I have had surgeries in the past and always found the recovery extremly hard . any advice?
thanks in advance

 
Old 12-06-2005, 05:44 PM   #2
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Re: long time since I have been here

Angels...I would be straight forward with the surgeon. I think if you express your fear in an organized and thought out manner, relaying to the surgeon your fears as they relate to your illness he should respond. I know it is difficult with some docs but telling him how you feel and letting him know your concern is your right as a patient. Please don't let him dismiss how you feel. Good luck I hope all goes well for you.

Glojer

 
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Old 05-05-2006, 02:06 AM   #3
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Exclamation Re: long time since I have been here

I know its been a long time since I posted this.. But I did want to update this.
I did have the surgery and it was horriable! I was to go home that day but end up spending 5 days in the hospital on a morphine pump and with my lungs filled with fluid. Also at night I would run a fever of over 104-105 that litterly burnt my face. the first few days I dont remember as I was so ill but the last few days was very hard. anyways I am posting the update because I want to let everyone know if you have lupus and have to have a surgery please do get a dr that is 100% ok doing surgery on you with you having lupus. I was told if I would of went home that night my lungs would of filled up all the way and i would of passed on. even after I was home I was very ill for a very long time. I am ok now but been having a lot more lupus flares since surgery

Last edited by angels_among_us; 05-16-2006 at 03:09 PM.

 
Old 05-05-2006, 06:41 AM   #4
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glad you are recovering

I had a Nissan Fundoplication {surgery to wrap stomach around esophagus} to stop severe gerd and a hiatal hernia repair. I know the pain you suffered and you probably still are. I wish I could give you some pointers,but all I did was pray every day that the pain would be better.I hope you continue to heal without anymore complications.

 
Old 06-30-2006, 03:57 PM   #5
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Re: long time since I have been here

Thats funny you should mention that your surgery made your lupus worse (I am not diagnosed with lupus, but I guess I am one of those people that there is a possiblity I could have it). I had galbladder surgery in December and since then my bladder problems flared up (diagnosed with overactive bladder, but going to see a urologist soon). I blame it on the surgery since I associate it with that time period because it started right after surgery. However there are other factors that could be causing it as well such as the topamax I am on for migraines. Who knows?
I am sorry you had such a horrible experience. Thank you for sharing with us.

 
Old 07-01-2006, 02:40 PM   #6
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Re: long time since I have been here

Hi, Angels. Just noticed your update. I'm sorry you've had such a wretched time of it & hope things are steadily improving for you. Hang tough! All my best wishes, Vee

 
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