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Old 12-14-2005, 01:11 PM   #1
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Join Date: Dec 2005
Location: PA, about an hour and a half from Philly
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Francie723 HB User
I don't have lupus now????

I had a question for anyone who would like to help. I was diagnosed with lupus in May 2001, have had flareups and all. I went to the doctor last month and my ana and anti-ana (dna???) came back negative. Completely negative. My doctor said to be happy, but I was angry and confused! Am I cured? Do I have to restrict myself like before? What does this mean? were all questions that ran through my head and now I am as confused as before. This is a hard enough disease to begin with, now I am told I am not testing for it. Huh? If anyone has any advice or has dealt with this, I would be more then grateful. Thank you!

 
Old 12-14-2005, 05:37 PM   #2
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Re: I don't have lupus now????

Dear Francie, Hi. I'm just a patient like the others in this group. But it's my understanding (based on reading, especially Dr. Wallace's book on lupus) that anti-DNA values reflect disease activity; so when you are not in a flare, it's actually expected that the value would go way down. But it's also my understanding that this *doesn't* mean you no longer have lupus...

In other words, you should still be treated and monitored closely, on a regular basis---watched like a hawk, is my sense.

FYI, I was positive ONLY for anti-Ro; and five years out, my rheumie still demands check-ups every 4 months (down from every 3). I'm on a maintenance dose of Plaquenil. And all this WITHOUT major organ involvement... And WITHOUT anti-ds-DNA, which apparently gravitates to kidneys more than the other "anti's". AND he does full bloodwork & urine testing minimally every other visit & extra tests if he thinks I look "punk" (I'm prone to anemia).

Maybe your dr. was just trying to convey that you've responded well to treatment? Which WOULD be very good news, actually.

I hope others will chip in soon, so you'll get more input from people whose bloodwork has improved over time & treatment. Meanwhile, hang in there, OK?! Take good care, Vee

 
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