Re: I don't have lupus now????
Dear Francie, Hi. I'm just a patient like the others in this group. But it's my understanding (based on reading, especially Dr. Wallace's book on lupus) that anti-DNA values reflect disease activity; so when you are not in a flare, it's actually expected that the value would go way down. But it's also my understanding that this *doesn't* mean you no longer have lupus...
In other words, you should still be treated and monitored closely, on a regular basis---watched like a hawk, is my sense.
FYI, I was positive ONLY for anti-Ro; and five years out, my rheumie still demands check-ups every 4 months (down from every 3). I'm on a maintenance dose of Plaquenil. And all this WITHOUT major organ involvement... And WITHOUT anti-ds-DNA, which apparently gravitates to kidneys more than the other "anti's". AND he does full bloodwork & urine testing minimally every other visit & extra tests if he thinks I look "punk" (I'm prone to anemia).
Maybe your dr. was just trying to convey that you've responded well to treatment? Which WOULD be very good news, actually.
I hope others will chip in soon, so you'll get more input from people whose bloodwork has improved over time & treatment. Meanwhile, hang in there, OK?! Take good care, Vee