Re: Symptoms of SLE?
Very high ANA's are often seen in Sjogren's syndrome, which can occur "standalone" or in conjunction with lupus. Some of its symptoms are dry mouth, joint pain, dry lungs, gastritis, thick blood, possibly even SCLE rashes (SCLE = subacute cutaneous lupus), and fatigue. (I'm quoting from my lupus hardcover here = the one by Dr. Daniel Wallace. There are several out there by Dr. Robert Lahita, also very useful and thorough.)
The autoantibody most correlated with Sjogren's is *anti-Ro*---as opposed to the ones you noted (anti-ss-DNA, anti-ds-DNA, and RF). It's seen in about 70% of Sjogren's---but also in about 30% of those with SLE.
I know several women with Sjogren's, and I also know two women firsthand (including myself) with positive anti-Ro in conjunction with the SCLE "subset" of systemic lupus. So give a holler if you want...
But your rheumie appt. is obviously what counts the most here, so I hope you get established quickly and move quickly towards some useful findings. Good luck and best wishes, Vee