It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-31-2006, 02:06 PM   #1
Junior Member
(female)
 
Join Date: Jan 2006
Location: Louisiana
Posts: 39
handmade_n HB User
Unhappy Misery loves company...

Since I feel too bad to go to my support group tonight, and too bad to sleep, I thought I'd whine a bit here. It hurts to type and I've had to take the splint off my arm, but it'll be worth it. It always is.

First, I guess you already know I'm miserable. I did four days of too much "going," and now I'm feeling the worst that I have in months. I can't sit up long, I can't lay down long, I hurt in all my bones. I feel feverish, with chills and dizziness, and it hurts to breathe. My face is lupie red. Do we ever really know if we have a virus or a flare? I think not.

I just had blood work done about a month ago, and everything was negative, so I should be fine, right? I've had positive ANAs, etc, before, and was diagnosed by a skin biopsy. My old rheumie said I had cutaneous lupus, the dermatologist said i had systemic lupus, and the neurologist said I had CNS lupus. No one agrees, so I just say lupus. I lost my job, and hence, my insurance. I've migrated from charity clinic to charity hospital while waiting for my disability results, and now that I've got disability, I'm waiting till May for Medicare to kick in. So, I'm still at the charity hospital where I never see the same rheumy doc twice. It takes forever to get an appointment, and I can't sit in the ER for the 8-12 hours it takes to be seen. I'm on prednisone 5mg/day, and can't get plaquenil that the docs want me to take because the charity pharmacy doesn't carry it. I also have fibro, APS, hypertension, all the itis's one can have, and I'm obese.

I know that this emotional fallout will pass, the flare or whatever will pass, and May will eventually get here... but today at this moment, I feel so overwhelmed, frustrated, and miserable that I needed to reach out and know that others go through these things. I read all about what your docs do, and I don't have that ability yet. So, I've got 4 months of unaided suffering to go through. I keep telling myself that others have it much worse, but it doesn't help me feel any better. I do wish they had it better, but it doesn't change that I'm miserable.

I'm rambling. Now I'm gonna put my splint back on and hope for responses.
Thanks for listening.
__________________
Susan, aka handmade_n
Lupus, Fibro, APS and more!

 
Sponsors Lightbulb
   
Old 01-31-2006, 04:35 PM   #2
Member
(female)
 
Join Date: Jun 2005
Posts: 74
pambyboo HB User
Re: Misery loves company...

I am so sorry you are having such a bad time right now. Please take care of yourself as best as you can, and I will say many prayers for you. Hang in there- we all have bad days, but tomorrow may be better....
pambyboo

 
Old 02-01-2006, 09:18 PM   #3
Member
(female)
 
Join Date: Apr 2005
Posts: 75
oeee HB User
Re: Misery loves company...

Gosh...I know what that is like...it is soo depressing and awful...and I am really depressed right now...even though the pain is better than it has been in months...I have such a hard time staying afloat, getting things done, being happy. I feel like just trying to live with lupus is a full time job, let alone do other things, have a boyfriend, etc. I broke up with my boyfriend a month ago...and when I did I went into full fledged panic that I wouldn't be able to find a new one...in that i didn't have the energy to go out and date someone new...let alone the fact that I have gained forty pounds since becoming sick, my body is far from toned, and the prednisone gives me zits. So I feel ya, life sucks at the moment....I want to be a certain person....and lupus just keeps getting in the way!!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
palpitations and a year of misery duality Heart Disorders 12 08-24-2011 02:46 PM
Are our nasty sinus problems and Asthma misery caused by common household items? Machaon Sinus Problems 6 01-20-2010 11:43 AM
suffering from exteme misery feeling from mix of Pure-O and HOCD -- need advice monsieurb54 Obsessive Compulsive Disorder (OCD) 1 04-24-2009 09:54 AM
Confused need opinions! He Loves me, he Loves me not? sarah92202 Relationship Health 81 08-15-2008 02:27 PM
Newbie::: My girlfriend loves me but seems to make me worse... mud1ta333 Bipolar Disorder 6 08-14-2008 08:27 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 11:42 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!