HI. I am new to this board, but have had lupus for more than 6 years. I thought that I was pretty well educated on lupus until this last week. I went in to see my urologist for a post-op appt. for lithotripsy to treat kidney stones. My right kidney is now clear, but I have 12 stones in my left that are too small to treat. I asked my doctor what was going on, and he said that my kidneys are not filtering properly due to the lupus affecting my veins. He said that lupus can cause the veins to get smaller as they get farther from the heart. My veins have gotton worse over the years, but I thought that it was due to prednisone. They have gotton smaller and smaller, so that pediatric iv needles are used and butterflies are used for blood draws. When I had my surgery for my kidney stones, it took the anesthisiologist about 30 minutes to finally get an iv started. He said that it was due the lupus affecting my veins. So, in just 2 weeks time, 2 doctors told me that lupus was affecting my veins. Does anyone have any info on this or the same trouble? I have looked for information, but can't find any! Help!
I've had a lupus dx for about 7 years, have a couple of books about it, and have never heard of lupus making veins smaller. Interesting, but what a bummer! I know if someone has had a lot of IVs (like for dialysis, chemotherapy, or frequent illnesses), then their veins get harder to find and stick.
Sorry about those kidney stones. Hope they'll somehow disappear without bothering you.
Dear Tiffany, I just double-checked one of my old PC "favorites" on your question. *Vasculitis* can narrow veins, one article did say. As far as SLE acting alone, without vasculitis, I've not read anything one way or another.
Was this narrowing of the veins just your urologist's opinion? And your GP's? Do you have a rheumie who weighed in also?
I've had stones myself. Ugh! So I can really REALLY sympathize with you. Did your urologist give you any advice (e.g., diet, proper hydration esp. in hot weather, etc.) on how to reduce your chances of recurrence?