The information I was given by my doctor says "For most people, lupus can be managed well, others my face serious, sometimes life threatening problems"
From what I understand from my dr.'s - most people can now a full life span with lupus - this is because of the advances in treating the problems it causes. As with any disease, a minority of people do not respond to treatment.
Thx for the quick rsponse....
Maybe you can help me w/ a few questions.
I have been feeling ill for some time now,
Loss of weight (but great appetite)
losing hair (but not in patches, YET)
VERY itchy skin, No rashes except for the damage i do from scratching.
very light menstrual periods
Sensitivity to light
Just recently joint pain (2 days, in ankles, legs, kness, arms, fingers)
my dr says i have antibodies for thyroid inflamation (TPO&TG) but cant diagnose me because TSH and rest is normal.
I asked can it be lupus and she looked like, ahh, not really sure. (Surprised me).
I know she did Bloodwork, a 24 hour urine check, and I saw from a bloodwork sheet in 2004 (not that this means much, was 2 years ago, a anti nuclear was negative)...dont even know why it was run.
do you think something wouldve showed with the normal bloodwork and urine testings?
What were your syptoms and how were u diagnosed........
THX So much!
Lupus is different for many people. It can attack any body tissue. My doctor explained people die as a result if the attack is bad enough over time to destroy and is a result of destrucion such as if you have it attack your kidneys, it may cause your kidneys to be replaced and be on dialysis in the meantime. I mixed connective tissue disease ( a mixture of lupus, schleroderma etc) my biggest problems are being tired, brain fog, and pain all over my body. I feel as though if I had a generator to do things it would be great. I used to be able to do so much, now I make myself do things but don't feel any energy. I just want to have my energy back.
My girlfriend died of Lupus after a 10 year battle with the disease. I understand that they are taking volunteers for stem cell research that has been very successful in treating Lupus. In some cases the Lupus has been gone for two years now.