Hi. Have your drs. tried more aggressive treatments, beyond Plaquenil? Like Dapsone, the gold compounds, methotrexate, etc? I've seen quite a few drugs mentioned in DLE articles, for people for whom Plaquenil isn't adequate.
I met a woman a few years back who was taken off Plaquenil & put on chloroquine. It's riskier (greater potential for eye damage) and hard to get (may have to be specially formulated). So it may not be the best 2nd choice?
I always wear sunblock on my face & hats. But if I'm going to be in the car for a long drive, I put block on my upper body, too. My windshield really seems to intensify sunlight, even those it's supposed to have UV protection...
Shoe Fiend, could the purple & red rashes be something else? Like cutaneous vasculitis? (My ankles are pretty ugly with it.) Or purpura? Or petechaie?
Shoe Fiend, your screen name made smile & think of a great birthday card I gave to a friend. Cartoon on front of woman shopping, surrounded by shoes. Caption read: May all your birthday dreams come true. Sign on wall read: Buy one pair, get six pairs free.
Anyway, WELCOME & hope you post regularly. Best wishes, Vee