It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board


Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 04-17-2006, 05:21 PM   #1
Join Date: Apr 2006
Location: Rockport MA
Posts: 3
JAC61 HB User

I was diagnosed w/ Lupus (SLE) in November 05. I have seen a dr, but he seems very scattered. He doesn't know what he's put me on (ie Prednisone...REAL bad reaction & Phequinil....allergic rash reaction). The drs so booked up it's very hard to see him and when I do see him he only talks about the drugs he will put me on instead of Lupus and what I can do for myself. I think I'm lucky b/c I seem to only have really bad joint pain and fatigue which I take 500mg Neproxen in the am w/ I think it's 200mg of Medtrol. But I'm scared out of my skin wondering what might my future hold.
Thank you for any help or guideness.

Sponsors Lightbulb
Old 04-17-2006, 05:36 PM   #2
Join Date: Apr 2006
Location: Rockport MA
Posts: 3
JAC61 HB User
Unhappy Re: scared......

Oh jeez! I just read my script... that's 4mg of Medrol.

Old 04-18-2006, 04:15 AM   #3
Join Date: Feb 2004
Posts: 5,493
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: scared......

JAC61, Lupus is so complex! Maybe it's better to read some, then hit your dr. with specific questions. There are hardcovers in most libraries & bookstores by two Americans, (1) Dr. Daniel Wallace, and (2) Dr. Robert Lahita.

Also, there are some fine links available from this Board. (1) Open the "sticky post" at the top of the thread list, the one about test results. The link you'll find there has a whole series of articles by a top East Coast rheumie. (2) Also, the "Resouces" tab above can take you into vrs. medical-info sites. e.g., choose MedLine Plus, then Health Conditions, then Rheumatology, then Lupus.

Since reacting to Prednisone & Plaquenil, are you taking any "disease modifying" lupus drugs, or just pain relievers? Was the Plaquenil generic or name-brand? I've read various people reporting that they reacted to the generic (hydroxychloroquine) but did better on the brand-name. Bye for now, Vee

Old 04-18-2006, 08:16 AM   #4
Join Date: Apr 2006
Location: Rockport MA
Posts: 3
JAC61 HB User
Re: scared......

thanks!!! I've done some reading on the internet, but I'll try what you suggest.
The Medrol is a steroid. I'm not thrilled about it, but it's not giving me some type of reaction so I'll take it.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Scared to start Methotrexate MegHurts Arthritis 6 05-18-2009 04:49 PM
Scared of others throwing up 777444b Panic Disorders 3 08-23-2008 06:02 AM
Please! I am so scared, I just want to give up! Hamilton92 Digestive Disorders 6 09-15-2007 05:39 AM
feeling scared/anxious snoopy63 Family & Friends of Cancer Patients 6 05-28-2007 02:12 PM
Addiction to oppiates, I am scared. Anyone else? Need advice!!! Chaddyfriend Addiction & Recovery 10 12-01-2005 10:34 PM
Very Scared Having 4th Surgery In One Year ttravers Cancer: Cervical & Ovarian 9 08-31-2005 03:34 AM
getting a PIC line next week....a little scared Roman77 Lyme Disease 12 07-22-2005 10:24 PM
scared to go to sleep damaged Sleep Disorders 5 03-12-2004 05:54 PM
just took pregnancy test this morning, scared Jenn_2003 Pregnancy 8 09-19-2003 04:19 PM
I'm so scared... AnotherOne Depression 8 10-18-2002 11:53 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:09 AM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2016 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!