Hi Everyone, the last couple of weeks have been filled with infection after infection that I can't seem to control. So I've been a bit sad about things, just tired of being sick. But, I live for those few mornings now & then when I feel good for a few hours. Joyeous! But, the reason I'm posting is my Rheum keeps sending me off to see other specialists & truly only will deal with the "core" Lupus disease (if I can't sleep due to Prednisone she perscribed I have to see my internal medicine doctor for a perscription for sleep meds).
I have an Internal Medicine Dr., ENT Dr., Neurologist, Allergist Dr. + Rheum Dr. etc. It's exhausting to go through the same touch base with each during appointments - not to mention - exhausting to have to go to so many places to get "full" care. Combined with the frustration that some days I can't drive at all due to worsening symptoms.
My question is how many people only see a Rheum Dr. for everything? Or do most of us with Lupus see multiple doctors?
Thanks everyone for letting me know how things work for you.
I too have many doctors (Primary (Internalist), Rheumy, Allergist, Opthmalogy, Gastro, etc). Rheumys are specialists just like the others and will only deal within their practice areas. I see my primary and rheumy every three months. My primary doctor handles most of my concerns and prescribes my pain medications based on my needs. My rheumy is caring about my Lupus and Arthritis symptoms and prescribes medications that she sees fit.
I go to my rheumy only when I need to with problems about my Lupus. I called him two days ago as a matter of fact because I think I'm having a flare but was told they can't get me in for two months! So I had to call my regular doc and had to go see them. Of course THEY didn't want to mess with my meds too much. I was given another prescription anti-inflammatory to try to "hold me over" until I get to see my rheumy grrr. If I'm sick or there's anything not directly related I go to see my regular doc. BUT I go to another place for "female" problems or anything like THAT. So I have a few doctors that I see but not too many.
Boy do I understand...... I call it my list of "ologists" I have never in my life seen this many different "ologists" or had any clue they had parted out the body like this. I mean I literally saw 3 different eye doctors..there was the opthomalogist, the retinologist and then finally my current eye doctor the neuro opthomalogist. Then you have your GP, rheumi, neurologist, urologist... luckily this is all I have so far. I guess I am doing pretty good! Sometimes I think it will probably be "death by copay!"