Hey, guys. I pop in here every now and then. In February my rheumy told me that it was looking more like I had lupus. Earlier this month I went back again and she said that it IS. She's been watching me for almost 2 years. I'd read somewhere that diagnosis typically takes two to ten years, so this was quick enough.
She does think that this may be affecting my brain, tho, as I've had some hallucinations. The MRI was fine, altho a lot of what goes on in the brain is chemical and wouldn't show up. I was sure this was affecting my brain, because there are times when I'm in such a fog, people just sort of look at me and scratch their heads. And other times I'm fine. At least I have an excuse now for being stupid!
I'm on Plaquenil, 400mg a day, and two topical steroids to try and get my scalp under control so I don't lose my hair.
Just wanted to update anyone who might remember me!