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Old 05-27-2006, 06:23 PM   #1
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Read new things about ACLE rashes

Hello, everyone. A friend asked me something about facial rashes the other day, so I did some reading. Come to find out, in addition to the well-known "butterfly" (malar) rash, there's also a *more widespread ACLE facial rash*. It can affect the entire face, and the V-neck area, too.

Just thought I'd share this. I'd always thought the ACLE rash was always the butterfly type, but I was wrong. I think someone posted recently about having a more widespread facial rash, so I thought this was a good time to post & see if anyone else has further info to share.

Best wishes to all,
Vee

 
Old 05-27-2006, 06:47 PM   #2
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Re: Read new things about ACLE rashes

Hiya Vee,

Thanks once again for your input on this. I have just a little more to add:-

The most typical form of ACLE consists of flattened areas of red skin on the face that resemble a persistent sunburn. Localized ACLE is seen when both cheeks and nose are involved. The redness can simulate the appearance of a butterfly.

Generalized ACLE is the more widespread form and this redness can be seen on the arms, legs, and body, and often produces a rash-like appearance. ACLE lesions tend to be very photosensitive, but do not typically produce scarring, although skin discolouration can be seen. ACLE is often seen in people who have active, sometimes severe, SLE.

As with all of the information we can obtain on anything to do with lupus, I feel that we need to look into things more in depth if we can so we can discount as well as identify things that might personally affect us.

One other thing I would like to say is that we must be careful of certain topical creams that we might use for any type of rashes. Some of the creams can in fact lead to thinning of the skin if used over a long period of time. This then in turn tends to show the blood vessels at the surface of skin. Once again this gives the appearance of a rash, so more and more cream is applied in some cases resulting in the endless merry go round of more cream, thinned skin and evident blood vessels that look like a lupus rash and so it is never ending. Please be careful of any topical creams that are used.

Take care

goldenwings
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Old 05-28-2006, 05:39 AM   #3
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Re: Read new things about ACLE rashes

Good Morning VeeJ & Goldenwings,

I just wanted to add that this subject came up before when I first joined the health boards. It came up because I was trying to find out why my neck and chest were so red in addition to my arms and legs. I get very little redness on my face unless I have been out in the sun recently. At that time I had just been referred to a Dermi and he later told me that these red areas were typical of Lupus and it's subsets. However, because it looks so much like the keratosis one can get from repeated sunburns, it should always be checked out by an expert, that is biopsied.

You are correct on the topical skin lotions too, Goldenwings. It is difficult to find information as to which ones do the damage though. Thorough research must be done. Since we are not allowed to reccommend any one over others, may we suggest that each person check with their physician and then research as much as you can on your own. Most companies put a toll free phone # on their product in case of any problems or questions. We should all feel free to use that phone # at will. That is what it is for. Don't feel shy or stupid. Remember there has never been a foolish question, only foolish people for not asking.

One more thing, I still am unable to find any reference to these lesions appearing on the soles of the feet. They are red, hot, sore, and itchey, but not open. They make walking difficult. I believe I mentioned before that the podiatrist I went to feels it has something to do with the Lupus so he is telling me to schedule with Rheumy or PCP and have them checked out. Since I have never seen or heard anything about a lupus rash on the soles of the feet, I am really questioning his opinion, but it seems I have little choice but to look elsewhere. Any info that anyone comes across referring to foot involvement with this lupus rash would be appreciated.

May God Bless Us All
Patience 50

 
Old 05-28-2006, 06:34 AM   #4
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Re: Read new things about ACLE rashes

Hello Patience,

Yes I agree totally that all information should be read and questions asked if we have any uncertainties whatsoever. I personally feel and believe though if in doubt, don't use it. The creams I was specifically speaking of were the topical fluorinated steroid creams. These are used a lot in the treatment of eczema and even then are advised only to be be used for short periods of time. Always ask and ask questions to make sure that this is the right thing for you for whatever symptom you might have not only with creams with any type of medication. Please be very careful too of OTC medications, ask the pharmacist for as much information as you can. Be safe not sorry.

Patience, I was thinking maybe hives for your lesions on your feet? A bit obvious I know, but have you been bitten and the bites have become infected? Jut a thing I would do here, either soak your feet or wipe them over with a vinegar solution, it kils bacteria, it can't cause any problems and will hopefully relieve the itching a little.

Take care

golenwings
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Old 05-28-2006, 07:02 AM   #5
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Re: Read new things about ACLE rashes

Hi Goldenwings,

Actually, I had thought of some sort of bites or even a foot fungus. I was treating myself with over the counter things for more than a month.When they didn't seem to have any effect I made an appt. with a podiatrist and he says no bites. He did a culture for fungus and it was neg. The sore spots are in a place where I can not see but the podiatrist says they look like the scarrs on my arms, chest, and legs, only sore and inflamed.

Actually, I did not think of bites for too long as these things are at the same place on the soles of both feet, almost as they are rubbing sores, except nothing would rub there much. I have been cleaning my feet morning and night with hydrogen peroxide to kill any bacteria. As a matter of fact, my dentist, just this week suggested I put a drop or two in my mouth wash to help with the unusual plaque build up I seem to get. He suggested it may also help with these sinus things I seem to get often. I suppose time will tell with that one.

May God Bless Us All
Patience 50

 
Old 05-28-2006, 07:51 AM   #6
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Re: Read new things about ACLE rashes

Hi, there, GW & Patience---so good to see both "here" this morning. Do either of you remember that recent post, in which (I think) someone described a rash that had spread to chin/forehead? If either of you find it, could you make sure someone mentioned the possibility of the more widespread form of rash?

I tried using the search box last night, but didn't find the post. Hnnnhhhh! Age has hit our little household hard. Car keys, wallets, pocket diaries---all sorts of stuff keep HIDING from us. All my best, Vee

 
Old 05-28-2006, 08:05 AM   #7
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Re: Read new things about ACLE rashes

Good Morning VeeJ,

If I come across anything like that in my catching up on posts I will try to remember. Like you, my memory isn't what it used to be. We are working on a system of putting things in the same place all the time so we always know where they are. So far we seem to have too many places to put things. As a result we don't always put them at the right place and still wind up searching. I am considering putting little slips of paper on drawers that says what is in them. You know what I mean, like we do for young children who are just learing to read, sign on chair, refrig, cupboard, mixer, like that. I know it sounds silly but it seems we are wasting a lot of time searching for things that should be right at out finger tips. I can't even blame this on thyroid or lupus as DH is just as bad as I am. Hope you are well and having a great day.

May God Bless Us All
Patience 50

 
Old 05-28-2006, 08:18 AM   #8
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Re: Read new things about ACLE rashes

Hiya ladies,

Found it !! It was under "malar rash" so I have put a post on about the new information.

I am just waiting about now for a nurse or a doctor to telephone me with advice on what to do. I googooeed and aahhdd over a beautiful litle baby girl this afternoon, and kissed the top of her head and generally drooled over her. Only to be made aware later that the little one had chicken pox. Very dangerous to us lupies as you know. So now I am waiting to find out what I should do under these circumstances of being in contact. I don't know, it never rains but it pours. Loved the baby though, she was absolutely gorgeous.

Take care.

goldenwings
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Last edited by goldenwings; 05-28-2006 at 08:19 AM.

 
Old 05-28-2006, 12:26 PM   #9
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Re: Read new things about ACLE rashes

Thanks for the info guys. You guys are the best. Now I noticed that i have a red scaly thing below my right eyebrow. Seems to get more scaly after being in the sun. I will ask my dermy about ACLE the next time I see him. Thanks again.

Michelle

 
Old 05-29-2006, 05:52 AM   #10
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Re: Read new things about ACLE rashes

Hiya Michelle,

You're welcome. Being in the sun - oh dear. Latherings of sun screen my love don't forget. Also the correct sunglasses should be worn. I know you know all of this but it is coming up to that time of year when extra care must be the order of the day.

Take care.

goldenwings
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Old 05-29-2006, 03:07 PM   #11
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Re: Read new things about ACLE rashes

Thanks you guys, now I know why I sometimes get the red face all over my face and now on my arms and chest and legs. I kept thinking that it had to be a butterfly rash and not all over my cheeks neck and chest. I will be heading to the dermie just as soon as I can get the time, maybe by then there will be enough evidence for a skin punch and I can find out one way or the other.

Glojer

 
Old 05-29-2006, 03:18 PM   #12
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Re: Read new things about ACLE rashes

Hi Glojer,

I'm sure we're all happy to be of help. After all it is what we are here for. I wasn't aware that others didn't know. My face normally looks a bit pink but when I'm not feeling well it positively glows of bright red blush. I think of a rash as spots or dots though and this is pretty much an even blush, but only on my face. Chest, arms, shoulders, and legs are much different in texture and color, although they can get bright pink too when I'm out too much or not feeling well. Evidently the same is true of Goldenwings. It's amazing how much we don't realize when we skip the details and just assume everyone knows. Good luck with the Dermi.

May God Bless Us All
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Old 05-29-2006, 08:21 PM   #13
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Re: Read new things about ACLE rashes

I'm glad to see this topic here. I have wondered and have seen pictures but I still didn't know. Sometimes I have had people ask me if I have lupus. I have not been diagnosed with anything, lupus being one of a few diagnosis candidate.

I think mine usually shows more in the AM and I haven't noticed if it is when I feel worse or not. But then, in the morning I always feel worse. My husband is always up before I am and his standard morning greeting is either "your nose is red" or "your face is red". But what can I expect after 54 years of marriage. I guess he is a keeper.

I started trying to narrow this down the end of Dec when I had several positive tests for autoimmune diseases. I did see a rheumatologist but she just looked at the lab reports I had brought her and said that she didn't know anything about those test. Can you believe that?

I have an apt. with another rheumatologist this Wed. 31 May. I am trying to get things together so that I can cover the best ground in this one.
BVan (Betty)

 
Old 05-30-2006, 03:48 AM   #14
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Re: Read new things about ACLE rashes

Good luck with your Wed. rheumie appt., Betty. I found the several rheumies I saw over the years NEVER accepted another doctor's test results. They asked for them, mind you, then recoiled when you handed them the copies (sometimes with real drama ).

I came to believe that it was better for the specialist to re-do all history-taking, tests, the physical exam, etc. The specialists typically use different labs and a wider array of (probably) better tests, have more finely tuned "ears", etc.

Anyway, let us know how you make out on Wed., OK? Best wishes, Vee

 
Old 05-30-2006, 04:10 AM   #15
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Re: Read new things about ACLE rashes

Hiya Betty,

Best wishes for your appointment on Wednesday. One other thing to add is that some doctors get really miffed and annoyed if you even mention that you think it "might" be such and such a thing. They do think then you are taking over the role of doctor and this certainly rubs them up the wrong way. I do know of patients who have actually been asked why they have come to the doctor if they aready "know" what is going on.

It is a pain but you will most probably have to go through all of the tests again, but this is what doctors do, they need their own set of results to work on. You have to tread very gently when having your first consultation. So explain your symptoms, listen to what is said and ask questions. If there is absolutely anything you are not sure about, ask again until you are happy with what has being said to you.

Take care.

goldenwings
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Last edited by goldenwings; 05-30-2006 at 04:11 AM.

 
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