| Re: mom with lupus
Hello & welcome. I think you're the best judge of how to possibly help your mom. With her schedule, maybe attending a local support group isn't an option? But some people do enjoy face-to-face contact.
Books, maybe? Look for hardcovers by either Dr. Daniel Wallace or Dr. Robert Lahita, available in most libraries & bookstores.
Maybe articles? See the "Resources" tab above.
Does she have regular check-ups? If not, is there help you could offer to encourage her to do so? e.g., watch her at-home kids? Offer to drive & keep her company?
As awful as this may sound, I think it's impossible to help when a loved one won't accept it. Here's an awful example. My sister largely refused my help after she moved in with our dad, without discussing it with me first (I'm her only sibling). He was a widower, almost 90, with severe Parkinson's. Destroyed checks I sent to cover his private-pay home care. Refused to speak to me when I visited. Refused to take him in for another opinion (1st dr. thought it was Alzheimer's). Wouldn't permit me to stay in the house (I had to stay in local hotel). Problem was, I live 400 miles away and could not stay for weeks at a time.
My sister's behavior was so counterproductive---and proof, I think, of her desire to control an out-of-control & horribly painful situation. She laughs now and freely admits that she needed to keep moving (so as not to think & feel), and to control SOMETHING (me). We lost Dad this spring; and she's still my sister, always, no matter what, with no hard feelings.
Maybe your mom will permit you to lighten her load somehow. You can only try & hope that she accepts something, however small for starters. I very much hope you two can team up for her better health! All my best, Vee
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