In all of the literature I have been reading about Lupus, one thing I keep coming accross is that, Dr.s are hesitant to diagnose or "label" someone with Lupus. Why are they soooo hesitant? Before I was diagnosed (at the point of near death), I had a GYN tell me after evaluating my bloodwork my ovaries had quit functioning because of a "problem" with my immune system, he refused to elaborate. I had been told at least 3 other times from my childhood on, that there was a "problem" with my immune system, but each time no elaboration. Lupus is not an extremely rare disease, especially among women. Several times I have had problems/symptoms which looking back, I can plainly see were Lupus related. No one said a word to me. I was never treated like a hypochondriac, (usually I would only go to the Dr. if I was certain I would die if I didn't, some people fear clowns, spiders, for me it's Drs.)I just wasn't given the big picture. The only reason I can come up with as to why a Dr. would refuse to diagnose is fear the patient would lose their insurance. Have any of you had that actually happen, just because you were dxd with Lupus? I would think it would be like diabetes, they can't refuse to cover you because you have it, right? Or is it more of a taboo shame thing? I read of how in some cultures Lupus is fairly common, but it is like a scarlet letter to the victim, they are expected to hide their disease and die quietly, as if they had done something evil to bring it upon themselves(like leppers of old). I don't think that is the case in the U.S.A. though, is it? what are your experiences?
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