Hope someone can explain the symptom's of this disease because what I've read on the internet it sure sounds like what I have.
My symptoms are: when I'm driving my vision isn't normal like a spinning sensation feel like I want to stop in the middle of the road where I try to shake my head to get my vision but doesn't work or suddenly stop on my brakes quick and have a shock through my body kind of like nerves.
But I times with my driving I feel I could really hurt someone not a good feeling.
Ringing of the ears,lightheadedness, heart racing just not feeling normal.
I had that same feeling among others - head aches, joint pain, dry skin, dry eyes, dry mouth, very tired, swollen glands - before I was diagnosed with Lupus and Sjogrins. I have been on Plaquenil and feel so much better.
My husband has menieres disease. One usually get very nauseaus with this disease. You can also pass out with it. So be very careful about driving. What you describe could be many things, you need to get a proper diagnosis, and please, once again, please don't drive when you feel like this.
Mary, just want to throw this into the pot in case it is of use. I know two people with Meniere's and they both have random dizzy spells/losing balance/falling to the ground when walking, let alone driving.
My mother, on the other hand, has something very similar to what you describe when driving and in her case it seems to be an eye condition. She has something strange which is normally pre-glaucoma but it hasn't actually ever developed into that.
Perhaps it is worth getting an eye exam? I had a few month's worth of vertigo earlier this year so I know how scary it is - luckily mine just went away - hope the same for you.
Can you explain how you felt with the vertigo.I've read alot but still like to hear personal stories.
I also have an appointment next Monday with the eye Dr. You know this has been going on for 2 years I guess.I've said things to my Rhuemy but its other conditions she more concern with then I forget to bring it up again Lupus Fog I guess.I'm Dx's with SLE,RA amd Raynaud's ans I take 8 different pills a day so who knows right.confused but its been going on to long.
Can it be from all the meds.but it so strange with the driving part.Yes I'll be sitting and it happens also but not like when your driving seems to have alot to do with turning your head quick.Do you know what I mean crazy.
Dear Mary, Antiphospholipid syndrome can cause vision problems. It can co-exist with lupus & with some other autoimmunes. Look for the "sticky post" ( = permanent post) about it at the top of the thread list.
I had, prior to Dx, episodes that felt like panic attacks: choppy breathing, sweating, fuzzy vision, dizziness, etc. Sometimes even had a sensation of being shocked electrically (could almost hear a ZZZZZTTTT sound). It seemed to occur mostly in airplanes, elevators, high bldgs., driving over bridges, and in subway cars. High &/or enclosed spaces, mostly. Anyway, I found out later I'd been borderline anemic, then flat-out anemic, for some time (you'd think drs. would have mentioned this?!) I *think* anemia alone can do such things, but so can lupus.
Also, about 1 hr. after I take Plaquenil, I always heat up in a quick & dizzy little "rush" that fades in a minute or less. This is a quick change in body temp & heart rate, with little or no vision change.
Do you take steroids? Eyes can be affected in some people (cataracts & glaucoma, for instance). Also, diabetes. And a whole slew of other unwanted problems.
Also: what MEDS do you take? There's a very good drug guide you can access using the "Resources" tab above, right on this screen. To get there, go next into MedLine Plus, then next into Drugs and Supplements.
These are just random thoughts & I'm just a patient, obviously. GOOD LUCK! Sincerely, Vee
You know your symptoms are duplicate to mine.When I take plaquenil along with all the others I feel sick to my stomach,nervous and lightheaded for about 1 hour after terrible feeling where you just don't want to take the meds.oh my vision drives me wacky.
Yes I take Prednisone 5mgs.daily for the last 4 years.Other meds are:Every day all mgs.
Folic Acid 1
Methotrexate 15 once week
Nortriptylin when needed
Can you tell me what the appreviations for the blood test are for Antiphospholipid syndrome I also had a miscarriage 15 years ago how wierd is that.
Mary, from the reading I did when I was trying to figure out what was going on with me, it is very important for your docs that you describe in your own words what you are experiencing, as it can give them important clues.
But, since you asked, the feeling I had was as if I was at the very top of a rollercoaster that suddenly went down. I stopped driving in case it happened then. As I said, it just went away after becoming progressively worse over a few months (on the day I made an appointment with the doctor would you believe?).
What my mother experiences when driving seems to come more from fast-moving light and dark patterns in her peripheral vision.
We didn't get to establish a cause - but at the lower end of the scale it can be a passing virus or middle ear infection (and I'm hoping it was one of those). The doctor did prescribe an anti-nausea medication which she said would help - I never took it. If it had continued she said we would start progessively ruling other things out. I had just had my eyes checked out thoroughly so fairly confident that wasn't it.
My mother's condition is still the same - it helps if she avoids driving late afternoon when there are long shadows (like driving past a line of poplars).
I have Meniere's disease. I was diagnosed by an ear, nose, and throat specialist. I am not sure about your symptoms, as you mostly described occasions of vision weirdness while driving.
I have episodes of Meniere's which will last for months, then I will be asymptomatic for only a couple of weeks, and sometimes only a few days. I will describe my symptoms, by starting at bedtime. When I lie down, the dizziness is so severe that, even though I know that I am not going to fall off of my bed, I still hold on to the side of the bed. When I sit up from a reclining position, I have to sit there until the dizziness goes away. If I do not wait, I WILL fall. When I stand up, and start walking, I bounce off of everything in my way. If one did not know better, they would think I was very intoxicated. Thank God, that only lasts for the first couple of minutes of my day.
When I turn my head, or when I look upward, I get severe dizziness. If I am not sitting down, I WILL fall.
I DO NOT drive when I am symptomatic.
On days when the dizziness is more extreme, I DO get nauseated. For this, I take phenergan. It helps, but can also make me sleepy.
There are 2 good Rxs for Meniere's dizziness symtoms. One is meclizine. I believe that is the generic name for the "car sick" Rx. I cannot remember the other one. When I am having severe dizziness, these Rxs DO NOT work. On milder days, the meclizine seems to help, but only after I have been on it for a couple of days. But, the headache that comes with these "anti-dizzy" Rxs, is worse than the dizziness, therefore I do not take it.
There seems to be a very certain difference in the description of the actual dizzy spell. I am sure you have heard the phrase "the room is spinning", when someone is drunk. That is to say that it feels like the room is moving.
Yet, with my Meniere's, I get just the opposite feeling. I am the one who is "spinning". The objects around me are still.
I also have lupus anti-coagulant syndrome, although I do not believe the two illnesses are related.
I hope this helps you, and I wish you the best of health!