Enlarged nodes and Lupus/sjogrens - Lupus Message Board

lovelife · 02-02-2007, 09:41 AM

Hey guys-
I am in need of some advice. I was diagnosed with UCTD - probably lupus/sjogrens overlap. I posted a while ago with the whole story. My question is if anyone else has had issue with enlarged lymphnodes over a long period of time. Mine are located in my chest and have maintained size for 6 months now at 1.2x1.7. I have been to a hematologist and she is not concerned for lymphoma because they have not increased in size. Has anyone else had this issue? Could this enlargement be due to the lupus/sjogrens overlap? I also have chronic ebv and wonder if it could be due to that as well? No one yet has been able to give me a reasonable explanation for this - other than to say that nodes in this area typically are not reactive. Please let me know your thoughts. . .
Thanks,
Jen

realisticchic · 02-03-2007, 07:26 AM

I have one lymphnode under my jaw on the left side that is always swollen, never goes down to normal. Ussually there are other nodes in my neck, chest, armpits that are swollen as well, but they same to take turns, whereas the one under my jaw just swelled up and has stayed that way (about 1 1/2 yrs. now). My Dr. says it is the Lupus causing it. The node under my jaw will occassionally have sharp pains in it as well,and gets worse when I have a cold/flu. hope this helps!

slvricn · 02-06-2007, 08:00 AM

I don't think my lymphnodes are swollen, but the ones under my arms - on both sides are extemely painful - anyone know what that could be about? I have still not been diagnosed yet, but Doctors are still working on it. I get real short of breath lately,and have this dry little cough, along with all the other fatigue and pain. Hope I can get some answers soon.
Jan

watoozie · 02-06-2007, 08:29 PM

The glands under my chin were like golf ball size, after I was diagnosed with Lupus and Sjogrens and put on Plaquenil they went down and have stayed down. My headaches are gone which were so bad every day of my life, my aches and pains are not gone, but are not near as bad, my nails are not blue tinted anymore, my skin is better too. It took about 4 months for the Plaquenil to kick in, now I would be afraid to go without it. I see my rheumatologist Wed for my 6 month check up, I also have blood work every other month. I just feel so much better than I used to, I think I'll live now. lol

lovelife · 02-07-2007, 08:21 AM

Hey Everyone!!
Thanks for replying back - I actually feel better knowing that I am not the only one!! I have been on plaquenil for about 6 months now and this gland is still enlarged. Oh well!!! I have a repeat CT scan in 3 months and if it is still stable - I think the doctor is going to chalk it up to the connective tissue disease. Within the 3 months though I think I may go for a second opinion. I want to be sure that I am doing everything I can.
Let me know how everyone is doing - you are all in my thoughts and prayers. . .
Jen