Originally Posted by ljs
I still don't know what autoimmune disorder I have, but I had a new test come back with a positive result. Previously I had my ANA show a repeat high titer (>1:1280). Follow up ENA and complements were ordered. Previously ENA has been negative. This time RNP is showing positive. Unfortunately this isn't specific either so could be SLE or could be MCTD. I am being referred again to an immunologist/rheumatologist at at a hospital clinic where my gp has had some good success. It's going to be a few months to wait but my symptoms aren't that bad aside from Sjogren's type dryness.
ljs - I hope you get your answer soon. I have MCTD; Lupus/Rheumatoid/Raynauds and Sjogrens. My ANA was tested several times, each time coming in at 1/10240. Just a tad high, lol.
The process of testing and not knowing and finding a cocktail of drugs to help isn't fun. I'm on Presnisone, 10 mg, MTX, 20 mg and Nefedipin, 60 mg. I'm still swollen, still stiff, still tired but better than I was a few months ago. It's a long process.
We're lucky there are some medications out there to help. The side effects are not great, but living in constant pain and not being able to function is worse...well to me anyway.
Keep us posted. I wish you well........