Hey guys, first time on these boards, well these one anyway!!
I have had lupus for 20 years, in remission for 12 of those which was fabulous.. seems like I am possibly having a fare, despite all the bloods being negative I have lupus like symptoms. I wanted to check in with you if these sound familiar. I know it sounds strange but I had such a bad time first time round I've kind of blanked out how it was and I don't really remember if I had these first time around! I had really bad cold, flu like symptoms over xmas which wiped me out, got thyroiditis and laryingitis twice.. could hardly move I was so tired. Then about six weeks ago, I got really bad pain all over my body from my toes right up to my head, really bad pain in teh muscles, joints, oh boy was it bad but no obvious inflammation. Really nauseaus, headaches, dizziness, more than I normally have (I have a balance problem to boot!) and so tired. Poor appetite (although funnily enough not for chocolate
I have no rash this time though. The doctors thought at first it was viral, I wondered fibro as my mum has this. anyways they are suggesting going onto plaquenil to see if this will boost my system. I was on steroids first go round. I was just wondering does this sound like your symptoms and if you are on plaquenil how long does it take before you notice any difference? Always hoped I'd never be here again but now that I am I'm thrilled that 20 years on boards like this exist, and I can share with you all on here.. x