Not feeling well................
Well, I was finally put on plaquenil 200 mgs twice daily, diclofenc 75 mgs twice daily, folgard, and rozerem. I have been on the plaquenil 1 month now, and have seen a definite improvement of my swelling, and fatique. 2 nights ago, I had a very strange thing happen that scared me. I came home from work at midnight, took my meds, crawled in bed and started having pain come over my entire body. My right foot swelled, I couldn't move my toes, ankle or foot, couldn't walk. and I had arthritis pain and swelling in every joint in my fingers, wrists, hands, knees, and shoulders. I had a horrible headache, pain on my right side of my neck that radiated to my head, and numbness and tingling in my arms. I also had major pain when I took deep breaths. I woke my husband up and said I didn't feel good and something was really wrong. He fell back asleep. My right calf muscle was excruciatingly painful . The sheet was hurting my foot. When I hobbled out of bed, it took me 3 tries before I could go to the bathroom. I was so out of breath, and it hurt to breath. I went to my regular dr. who sent me to the hospital to get DVT dopplar us (negative) and she drew a bunch more blood (c3, c4, sed rate and others) she said she thought I had chostro something and that was why I couldn't breath. (inflamation of the cartilage) although I did nothing strenuous and didn't hurt myself to cause this. Yesterday afternoon, the pain was coming back so she gave me a scripts for steroids. (I just weaned off them 1 month ago) I have an appt today with the rheumy but feel like he is just gonna blow me off again. Looking at me, I don't look sick except the bags under my eyes. Now I am hobbling around because My knee hurts but no swelling. Most of my joints hurt still, but no swelling, and that is what he always looks for. (I am never swollen when I see him--go figure!) I am just in so much pain and it is really making me non-functional. I don't know if he can add something to my meds or change something. The difclofenac doesn't seem to help me at all. Can anyone relate to any of this. I am also having more muscle involvement and soreness than usual. I aslo went to the retinal specialist for the plaquenil eye exam and I told him my eyes were always blood shot. He looked in my eyes with a machine and said I am not producing tears which is causing the blood shot look, and that it goes along with auto-immune problems. My rheummy doesn't know what is going on with me and diagnosed me with undiff connective tissue disease. I guess I just needed to get this all off my chest. My husband doesn't seem to understand. It is very hard to be fine one minute, and not be able to walk 1/2 hour later with my whole body hurting. Also, my flares usually don't last long--a couple days usually, and I start feeling better. I had one where I felt aweful for 3 weeks, but I am getting them so much closer together--every few weeks--does anyone else experience this? My breathing problem is better today. Thanks for the input and reading this horribly long post.