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Old 06-02-2007, 12:08 PM   #1
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ErinS64 HB User
new rash

I have had more of the systemic problems with Lupus and my rash's have been pretty mild till lately. They finally took me off the prednisone. Unfortunately I broke out horribly. My face is awful! I have had a constant rash on my chin for the past almost 3 months. It gets so red sometimes it has a purplish tint to it and it is constant unlike my nose and cheeks which is always much worse in the morning and then calms down in the afternoon. In the morning it is beet red. It is also very red when I get heated up, shower or even bathe. But for the second time in a little over a month I have broke out really bad. My face gets a bumbs and gets hot to the touch. I has extended down my neck and on my chest and now I have the small round spots all over my chest. They look like big flat red round patches. I have heard of the circle rashes but in those the center is clear. These are not clear. It is a solid round circle about a 1/2 to 1 inch across and I am getting more and more of them. This time my hands also broke out which hasnt happened in a long time. That is the one thing I have had since I was a teenager. I get clear fluid filled clusters all over my hands. My daughter is getting this now to which you can imagine freaks me out a bit.

I know I need to go to a dermi and have been told as much by my rheumi. He said it would help with the diagnosis as well to see what type of skin manifestation I am having and what antibodies are present but the fact is I am tapped out monitarily. I have had a abdominal sonogram, CT and a full work up by a cardiologist in the past two months between also having to go the rheumi every two weeks. I am copayed out!! They also are wanting me to go to a gastro...which means yet another round of invasive tests. I can't tell you how much I want to put that off. They are now concerned about my esophogus and ...heck I dont really hear them anymore if you know what I mean.

I was really just curious since I know some of you have more experience with the rashes if there is anything over the counter that would help.

I have tried not wearing make up but the last time I went out it was awful. I had a 8-9 year old girl actually turn do a double take and stare. I know my face looks really bad right now, and I can hardly blame her for it, but it is uncomfortable to say the least. I have avoided direct sunlight completely. I am just at my wits end here and am hoping someone on here will have some good advise for me.

You know it is funny. I have had this stuff for almost 3 years now and up till now I have really just taken it all in stride, but I am afraid my vanity is getting the best of me here.

Please let me know if anyone has any tips.

Erin
Dallas TX

 
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Old 06-02-2007, 04:48 PM   #2
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Re: new rash

Erin, Because your post rang some bells, I looked up Prednisone in a drug guide. Among the skin problems it can cause: acne, and purple or red discoloration. Have you asked you dr. if the problems you describe could be Prednisone-related? And if possible: after discontinuing, will they go away on their own?

Just a thought & hoping you can somehow ward off a visit to a specialist. Sending you my best, Vee

 
Old 06-02-2007, 04:56 PM   #3
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Re: new rash

Hi Erin,

My sympathies that you're in too hot TX! I lived in Waco for 10 very hot years, during which I was diagnosed with lupus.

Is there any chance you're taking Celebrex? When I first had 2 odd spots on my forearms (red ovals with raised edges, no itching), I was put on Celebrex. In the following week those two spots multiplied until it looked like leprosy from my fingertips to my elbows; my hips, knees, and ankles were taking turns swelling; and I couldn't stand up for more than 20 minutes due to pain. Turns out I was suddenly allergic to sulfa (as many lupus patient are) and Celebrex has a sulfonamide in its chemical makeup. Who knew? Could that be part of your ongoing rash?

One of my loopie friends in Waco got one of those cool collars to keep in the freezer at home and at work to wear in her hot car while driving. It has helped her to avoid that over-cooked feeling a lot.

I wore and wear SPF 45+ sunscreen, a broad brimmed hat, long sleeves and long slacks and that helps, too. My most excellent rheumie in Waco told me that it was okay to walk from house to car and from car to building; to briefly attend a picnic in the shade of a tree or pavilion if dressed as I described above; and never to plan a day at the beach or the pool.

Wishing you well! Barbara
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Old 06-02-2007, 07:06 PM   #4
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realisticchic HB User
Re: new rash

In addition to the lovely malar rash, I have extremely oily/sensitive skin prone to breakouts. I absolutely can not wear liquid foundation of any sort it will congeal on my face. Traditional powder make up is a clumpy no-no too. Several brands have caused redness and irritation, however i really wanted something thatwould cover the rash and had an spf. Recently, on the advice of another Lupie friend, I purchased "bare Minerals" makeup. While it doesn't totally cover the malar rash, it does disguise it greatly, giving me the appearance of a light blush, and believe it or not....it doesn't clump, congeal, or make me break out. No redness and it has an spf factor! It has totally stopped those "double takes", in fact I look younger and more rested. It is a little pricey, but I have found that I can make it last a bit longer than what is average.

 
Old 06-03-2007, 04:32 PM   #5
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ErinS64 HB User
Re: new rash

Quote:
Originally Posted by VeeJ View Post
Erin, Because your post rang some bells, I looked up Prednisone in a drug guide. Among the skin problems it can cause: acne, and purple or red discoloration. Have you asked you dr. if the problems you describe could be Prednisone-related? And if possible: after discontinuing, will they go away on their own?

Just a thought & hoping you can somehow ward off a visit to a specialist. Sending you my best, Vee
I have been on the prednisone for 2 years now. When I was having the IV treatments I had the acne problem alot and I still have the red spot all over me from that. They look like blood freckles. I have been on the lowest dose in a long time with the exception of when he tried bringing me down to 10 mg a day a year ago and I went into a marjor flare and had to be brought right back up to 60mg. My daily dose was 40mg a day till I started the methotrexate and they have been bringing me down slowly since then and I finally got off of it about two weeks ago. The chin rash covers my entire chin and is solid. I have had it for 2-3 months now but the really bad rash all over my face neck and chest came on after they took me off. In fact he put me back on it again friday at 30 mg a day and it has already gotten better. I am not getting any new round spots (they are totally different from the pitichea or purpura I have had those alot) but not completely and it doesnt appear that it will since it should have done so by now. Usually the prednisone works pretty quickly on me. Is there an over the counter cream??

Erin

 
Old 06-03-2007, 04:37 PM   #6
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Re: new rash

Quote:
Originally Posted by realisticchic View Post
In addition to the lovely malar rash, I have extremely oily/sensitive skin prone to breakouts. I absolutely can not wear liquid foundation of any sort it will congeal on my face. Traditional powder make up is a clumpy no-no too. Several brands have caused redness and irritation, however i really wanted something thatwould cover the rash and had an spf. Recently, on the advice of another Lupie friend, I purchased "bare Minerals" makeup. While it doesn't totally cover the malar rash, it does disguise it greatly, giving me the appearance of a light blush, and believe it or not....it doesn't clump, congeal, or make me break out. No redness and it has an spf factor! It has totally stopped those "double takes", in fact I look younger and more rested. It is a little pricey, but I have found that I can make it last a bit longer than what is average.
I have wondered about that stuff...does it last all day or do you have to keep reapplying?

 
Old 06-03-2007, 04:42 PM   #7
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ErinS64 HB User
Re: new rash

Quote:
Originally Posted by BarbaraH View Post
Hi Erin,

My sympathies that you're in too hot TX! I lived in Waco for 10 very hot years, during which I was diagnosed with lupus.

Is there any chance you're taking Celebrex? When I first had 2 odd spots on my forearms (red ovals with raised edges, no itching), I was put on Celebrex. In the following week those two spots multiplied until it looked like leprosy from my fingertips to my elbows; my hips, knees, and ankles were taking turns swelling; and I couldn't stand up for more than 20 minutes due to pain. Turns out I was suddenly allergic to sulfa (as many lupus patient are) and Celebrex has a sulfonamide in its chemical makeup. Who knew? Could that be part of your ongoing rash?

One of my loopie friends in Waco got one of those cool collars to keep in the freezer at home and at work to wear in her hot car while driving. It has helped her to avoid that over-cooked feeling a lot.

I wore and wear SPF 45+ sunscreen, a broad brimmed hat, long sleeves and long slacks and that helps, too. My most excellent rheumie in Waco told me that it was okay to walk from house to car and from car to building; to briefly attend a picnic in the shade of a tree or pavilion if dressed as I described above; and never to plan a day at the beach or the pool.

Wishing you well! Barbara
I have gone over everything. But the strange thing is I came off of EVERYTHING but the methotrexate because they were really trying to figure out what was causing my heart problems and wanted to rule out medication problems..That is why they weined me off of the predinose. I even stopped taking he ultram. The only thing I was taking was the mtx and vicodin when the pain just got to be too much.

For the record, I cant take sulpha meds anymore either now. My dr said that it is common with lupus.

 
Old 06-04-2007, 05:27 AM   #8
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realisticchic HB User
Re: new rash

EvenStevens,
I have found that it will last from morning to about 10:30p.m. (my bedtime) without anytouch ups, amazingly, the color doesn't get darker either like some powders I have tried before where it starts out one shade, and by the end of the day it is 2 shades darker

 
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