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Old 06-10-2007, 10:03 PM   #1
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Join Date: Jun 2007
Location: KY
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aspen26 HB User
I just need someone to understand

Hi I am 28 and I am having a down spell when it comes to dealing with the fact that I may have lupus. The reason is this. I have had a bad year when it comes to feeling bad. I have been extremely fatigued. I have had major flares of chest pain. I have just felt fluish so many times (oh but never actually or anything wrong with me for that matter). I am the migraine queen. Did I mention I am the queen of mouth sores as well? Only to visit the doctor and find out that I feel so bad and can't get of bed, but there is absolutely nothing wrong with me and every test comes back negative. Do you know how embarrasing that is? I mean I feel like a total hypochondriac. I went to the urgent treatment center and because they could see the sores and blisters in my mouth they knew I was miserable, but if those wouldn't have been there, I would have been an idiot because all the test were negative.


Anyway, my point is no one understands. When you are not diagnosed with Lupus from your Rheumatologist then your family doctor don't understand why you are there so much. And when you call your Rheumatologist's office about other things the office says that she doesn't treat those things. It is a no win situation. When I actually get in to see my rheumatolgoist she is great, but it is getting through to her that is the trouble. I feel like I am stuck between a rock and a hard place right now because I am not diagnosed with lupus, but at the same time I don't want to be diagnosed with Lupus. It just seems like if I were diagnosed with it then I would have an explanation for everything that I feel and go through and people wouldn't think I am crazy, lazy, or a hypochondriac. My life is very blessed and my family and friends understand, or at least some do , but I just need to vent and I need more people to understand and listen to me.

 
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