Re: Shaking eyes
When my lupus first showed up it was thought to be MS but they did rule that out and found that it was instead lupus. I did several rounds of solumedrol iv treatments and then did IVIG for a year. It did get better for a while. Since I came off the IVIG they have had me on the oral steroids. 60 mg a day for a while and then down to 30mg a day with the MTX but I am still flaring. It is just a matter of where.
I really try not to post when things are this bad since I know there are so many of us that really have alot of things to deal with on a daily basis and it is all so relative and what you have adjusted to. I have really tried to adjust to this and work full time. But I am afraid that this is too about to come to an end since my dr has said on several recent visits that disability is something I should prepare for. How do you prepare for that? I am a single mom and must work to pay rent! I dont have disabilty insurance yet but the AFLAC people are suppose to be coming out to our office in the next month and it will only require a 1 year pre-existing condition exclusion so I just have to hold out a year after they get me set up.
Hopefully, my MRI will be okay. I had some lesions on my brain on the last MRI but they were from the Lupus. Not MS. My right eye isnt as bad as my left so I can still read pretty well most of the time.
The heart problems are concerning, but I would probably have them even without the Lupus with my family history. I think the meds are just probably speeding up the process a bit.
Anyway, hopefully someone on this board will have some info on the Cellcept. I have read up on it, but there is nothing like personal experience from people who have actually taken it.