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Old 07-10-2007, 07:10 AM   #1
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Kel123 HB User
Anyone have nerve problems also?? (cubital tunnel or ulnar nerve entrapment)

Hi there,

I was wondering if anyone has ever had problems with their nerves also. I have been diagnosed with UCTD (still sitting on that possible lupus diagnosis) I am on prednisone, plaquenil, and relafen currently. I have been having this relentless pain in the knuckle of my pinky and sometimes the 2 fingers next to it. There is also a lot of numbness and tingling going on. I have almost lost complete use of these fingers when the pain is at its worse. I would have thought that all the meds I am on would help this. I feel great now otherwise except for the pinky and finger pain. I was doing some research and my pain seems to be sort of like what I have read about cubital tunnel syndrome (like carpal tunnel) or ulnar nerve entrapment???? Could this be why (if it is nerve pain) the pain meds and steroids are not helping?? Has anyone else experienced this?? I need to talk to my rheummy about it again when I see him in august. I am not looking forward to seeing another ologist / specialist to further investigate this, but may need to! Thanks for any insight.
Kelley

Last edited by Kel123; 07-11-2007 at 11:48 AM.

 
Old 07-11-2007, 06:52 PM   #2
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BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User
Re: Anyone have nerve problems also?? (cubital tunnel or ulnar nerve entrapment)

Hi Kellie,

I had a friend in TX who had pain and numbness in her middle, ring, and pinky fingers and had to have a surgery called "ulnar nerve transposition" (I called and asked her) because her ulnar nerve was being compressed up near her elbow. Perhaps that's what's going on??? Her surgery was done by an orthopedic surgeon who is a hand and arm specialist.

Hope you and your doctors find something that helps you be as good as new!

Hugs - Barbara
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Old 07-12-2007, 06:02 AM   #3
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ErinS64 HB User
Re: Anyone have nerve problems also?? (cubital tunnel or ulnar nerve entrapment)

Quote:
Originally Posted by Kel123 View Post
Hi there,

I was wondering if anyone has ever had problems with their nerves also. I have been diagnosed with UCTD (still sitting on that possible lupus diagnosis) I am on prednisone, plaquenil, and relafen currently. I have been having this relentless pain in the knuckle of my pinky and sometimes the 2 fingers next to it. There is also a lot of numbness and tingling going on. I have almost lost complete use of these fingers when the pain is at its worse. I would have thought that all the meds I am on would help this. I feel great now otherwise except for the pinky and finger pain. I was doing some research and my pain seems to be sort of like what I have read about cubital tunnel syndrome (like carpal tunnel) or ulnar nerve entrapment???? Could this be why (if it is nerve pain) the pain meds and steroids are not helping?? Has anyone else experienced this?? I need to talk to my rheummy about it again when I see him in august. I am not looking forward to seeing another ologist / specialist to further investigate this, but may need to! Thanks for any insight.
Kelley
I have had alot of nerve problems and the standard pain meds will not address them. I take Neurontin for my nerve pain when it really flares up. amitriptaline will also help but it really makes you gain weight too so keep that in mind.

Erin
Dallas TX

 
Old 07-12-2007, 09:03 AM   #4
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Kel123 HB User
Re: Anyone have nerve problems also?? (cubbital tunnel or ulnar nerve entrapment)

Barbara,

Thanks for the info. After several months of this, I did some investigating, and that is exactly what it sounds like to me. I am going to talk my rheummy in a couple weeks about it. Just one more thing to add the list It is quite bothersome because it is my dominate hand, and it hurts all day and all night for that matter!

Erin,
thanks for the response. Do you think your nerve problems are in part from the lupus?? I know I need to have this looked at by a neurologist or ortho, but I am still recovering somewhat from a horrid surgery back in January, and the thought of another surgery is more than I can take right now. I guess I will probably need to have some tests run to see if it is true nerve pain or not. I hope medication can help it. The funny thing is, the surgery I had was rectal related, and I had nerve studies done on the pudendal nerve, and severe damaged was noted. I was told it was from childbirth, but wonder if it could be related???

Kelley

 
Old 09-26-2007, 09:57 AM   #5
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sandra195 HB User
Re: Anyone have nerve problems also?? (cubbital tunnel or ulnar nerve entrapment)

Hey Kel123

Hi from a newbie. I was diagnosed with ulnar nerve entrapment at the elbow after a work injury. The diagnoses was late (9 mos. later) so the damage had been done and progressing. The ulnar nerve was tranposed subcutaneously and I experienced some relief from the pain and numbness. But, I was having difficulty with muscle strength and complete range of motion. I finally took it upon myself to see a chiropractor to recover that range of motion and he found a compression of the ulnar nerve in my neck!! could have been from a car accident from four years ago or another injury I had that predisposed the whole nerve pain, numb fingers result. In short, I would suggest to anyone that is having numb fingers, constant elbow/nerve related pain and symptoms to have a look at the WHOLE picture not just the elbow to hand. That nerve originates in the neck which I am now thinking it should have been the place to start. Hope you have resolved some of your pain and numbness but if it is persisting you might want to try the "whole picture" idea.

 
Old 09-27-2007, 07:34 AM   #6
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Kel123 HB User
Re: Anyone have nerve problems also?? (cubbital tunnel or ulnar nerve entrapment)

Hi Sandra,

Thanks for the info. I actually had an EMG of my wrist and hands that was normal, and an X-ray of my neck which showed compression of several vertebrae and narrowing of the spaces from possible muscle spasms. (I did in fact have tortacollis-- severe muscle spasms in the neck while I was pregnant with my 3rd child ) The radiologists suggested an MRI to look further. My rheumatologist however, thought I should try a different Anti-inflammatory (Dolobid) and if it is not better in another month, see a hand specialist. The dolobid helps sometimes. It is much better, but starts hurting again when it is time for another dose of medication. I still get on and off numbness. I am so tired of pursuing yet another medical problem! I plan on having my neck looked into further--especially since my Emg was normal. I do no have any elbow pain. Thanks again. Are you better now with the chiropracter??
Kelley

 
Old 09-28-2007, 09:57 AM   #7
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sandra195 HB User
Re: Anyone have nerve problems also?? (cubbital tunnel or ulnar nerve entrapment)

Quote:
Originally Posted by Kel123 View Post
Hi Sandra,

Thanks for the info. I actually had an EMG of my wrist and hands that was normal, and an X-ray of my neck which showed compression of several vertebrae and narrowing of the spaces from possible muscle spasms. (I did in fact have tortacollis-- severe muscle spasms in the neck while I was pregnant with my 3rd child ) The radiologists suggested an MRI to look further. My rheumatologist however, thought I should try a different Anti-inflammatory (Dolobid) and if it is not better in another month, see a hand specialist. The dolobid helps sometimes. It is much better, but starts hurting again when it is time for another dose of medication. I still get on and off numbness. I am so tired of pursuing yet another medical problem! I plan on having my neck looked into further--especially since my Emg was normal. I do no have any elbow pain. Thanks again. Are you better now with the chiropracter??
Kelley
Hey Kelley

Yes I have improved with chiropractor. Sometimes after visits I question that because I can be uncomfortable but it subsides and I see such a marked improvement in my mobility and much less pain. He works on my neck to hand and really the hand relief is the best but the site of my elbow surgery continues to be the biggest problem. that is so a time thing. As for the anti-inflammatories, I feel it really is just a bandaid and although you get relief it is not getting to the root of the problem. I forced myself to avoid them as I found if I was in less pain I did more than I should and ended up hurting myself again. Pain is my guide, ice is nice, gentle movement helps. Not bad to take for sleep at night if necessary but then again I have hurt myself by sleeping in a bad position. Gee Whiz!! Maybe you could see a chiropractor for a consult anyway, try to find one who you can make sure is reputable, ask for references and follow up.
Again, the improvements are worth it to me, hand is almost not numb, I can open my hand all the way, bend my elbow and touch my shoulder (do my hair!) The pain still comes but it is decreasing in severity and occurance.
Good luck to you, try to stay positive and celebrate any successes no matter how small they seem, WHOLEistic health/medicine includes the power of positive thinking. Healing thoughts to you, Sandra

 
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