I am a new member and registered yesterday.My name is rayhaneh and I am from iran but I immigrated to UK when I got married 2 years ago and live in cardiff(wales) now.
I have lupus from 7 years ago when I was 20 years old and it is SLE.
I was on prednisolon and lots of tablets ,then after 2 years it affected my kidny which there were lots of protein and ceratine in my urine, so I was taking the psychlofasfamaid(not sure abot spelling) pulses with infusion every month for 6 months and it was terrible !!!!!!!!!!!
then I started some kind of energy healing which was really helpful and my steroid reduced to 5mg a day .
But when I came here because I had lots of stress(new country and culture,far from friends and family,don't find job,....) and my body should use to new wheather so my kidny affected again and I was so sick and again those pulses for 6 months and hair loss.
But I wasn't dissapointed and continue my searching because I always believed that I shoulden't be weak and hopeless.
So , I read a lot and did some alternative therapies like foot reflexology and indian head massage and my energy healing .
I found lots of information for nutrition which is so important for lupus (which drs say it's not) and changed my nutrition.
As a result I went to visit my Dr 3 months ago and the results was really grate so he stoped my steroyd !!!!!!!!!!!!!!!!!!!!!!!!!!!!
And I had an appointment last week (9th july) and there wasn't any protein or ceratine in my urine (my urine test was normal) .
My DNA was always more than 200(the normal is less than 20)and last week my DNA was 75 (from more than 200)!!!!!!!!!!!!!!!!!!!!!
That isn't mean I am compeletly well and without lupus, that means I am absolutly better and can continue my way to be totaly lupus free.
So I wanted to tell you all, that lupus isn't an incurable illness,it is just a sign of body that says something is wrong with me.
If you beleive it and do something,change your stessful situations and have respect to your body,it will repair itself,but if you want to continue the same way ,the problem is there for ever.
Change your way of thinking to change your life.
You can choose yourself to live all your life with lupus and pain or try different ways and want to be better.
I can give you one site address which is about 2 girls who healed there lupus and gave lots of information.
If you are interested and just want to change , please leave me a message and I will tell you the details.
Thank you so much for take your time to read my story breifly and I send you all hope and love.