Re: Help! 'm always Sick!!!
Hi, Amber. You can find condensed info on lupus in the 3 "sticky posts" ( = permanent informational posts) at the top of the thread list. One lists the diagnostic criteria for SLE = systemic lupus erythematosus. You have to meet 4 or more, but not necessarily all at once, to support a Dx of SLE. So you should expect your new rheumie to take a REALLY THOROUGH lifetime medical history.
You mention cystitis, IBS, and frequent sinus infections. (DITTO to all 3 myself.) But those things don't "necessarily" point to lupus, as they can happen in & of themselves.
But I *think*---in my non-professional way, that is---that your positive ANA & antiphospholipid antibodies should count to fulfill two criteria. Keep trying, as there are excellent drs. out there that people like us really need to find. When is your appt? Bye for now, with my best wishes, Vee
P.S. Among many other things, I struggled with severe IBS for 20+ years, with cystitis for 10 years, and with nonscarring arm/torso rashes for 8 years. I saw all sorts of drs., including multiple dermies, obviously. Turns out I had the SCLE "subset" of SLE, positive for anti-Ro. Plaquenil & sun avoidance have helped tremendously. You are in your 20's, you wrote, so I strongly encourage you to SEEK ANSWERS & HELP with EVERYTHING YOU CAN MUSTER! My suburban drs., including rheumies & dermies, were a bust; so I went to a teaching hospital rheumie---who made it look so easy.