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Old 08-17-2007, 09:30 PM   #1
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ER experiences that make you go hmmmm.

I ended up in the ER Wednesday night with what I can only imagine was a nurse practitioner, I guess. I know she was not a doctor because she would say she called the doctor and he said..... I never actually saw a doctor. My rheumi couldnt see me and my left leg swole up really bad and he was concerned I had a blood clot in my leg and didnt want to wait till morning to see me if it was DVT since I had already been dealing with it for 3 days.

They did confirm that it was not DVT. The did the sono, a CBC and something called a D-Dimer. (my rhemie was amazed that they didnt run a CMP and uninalysis to rule out a kidney crisis since I was swollen all over just much much worse in one leg. (kind of freaked me out since it had NEVER gotten that big. My knee was the size of a cantalope and the swelling extended all the way up my thigh and about 5 inches below my knee. All she could say was my white count was pretty high and something about a shift in my white cell count and a lecture about drinking dr peppers (I allow myself one a day for a reward of drinking 4, 8 ounce glasses of water (I hate water). Then why am I not on a all natural organic diet. That there are many on the internet. How people with cancer go on all natural diets to get all impurities out of there bodies and all kinds of stuff. I told her I dont have cancer and she said I have something similar, my body is attacking itself just as cancer does. (she must have read that on the internet while talking to the dr.) Then went on to lecture me about taking the steroids for so long and the toxicity of taking cytoxic meds...How I need to see this other doctor that works strickly with holistic meds and diets. I am thinking, yes I am taking them and yet here I am all messed up with the 30mg a day...can you just imagine how bad I would be without them. I have tried and it has not work out well for me at all. After 15 minutes of listening to her I finally did say to her that she has no clue about what my case has entailed in the last 3 years. That I am under the care of a specialist that specializes in my type of condition. He consults with the 9 other doctors at the medical facitly I go to on my case and works closely with my other doctors and that since she has had to make several calls to a doctor she obviously isnt qualified to take on my case or tell me better than those I have consulted with. I only came there to make sure I was not in danger and next time would take a bigger chance to go further away from home to avoid her lectures from her. I then asked her if she lectures these cancer patients with whome I have so much in common that they should get off of there medications too. ...lol.. she didnt take that well but she did leave me alone after that. I did feel a little guilty for a moment till I could hear her out there talking to the nurses about this drink she is drinking that had some kind of godiva chocolate and vanilla and coffee. After that I didnt feel bad at all! In fact I might have said "you know that stuff will kill ya"

It just makes me crazy sometimes. I mean I may have been overly sensitive, I was in a lot of pain at the time and my dumb a** tolerance was very low but it truly ****** me off!! It almost sounded like she was blaming me for my condition. That all I had to do was go on the internet find the wonder diet, quit taking my steroids and immunosuppressant meds and I would be just fine.


My father ate pretty sensibly, didnt drink. rarely smoked - was one of those that would smoke on one pack of cigarettes for a month and then not touch another one for years. Yet he is dying of terminal congestive heart failure as we speak at 63. I lost 3 uncles at a very young age to cardiomyopathy. They were only 22 & 24. I had one uncle live to 40 but he had a heart transplant. My grandmother died at 44 of acute leukemia My mother said, you can do everything you are suppose to and still something will get you, so you may as well get on with the rat killing and live your life doing what you enjoy within reason.

I cant do much that I enjoy much anymore due to chronic fatigue and mobility problems... so man, leave my DP's alone!!! lol...

I swear I have had nothing but bad experience in ER's and am terrified that one day I will not go simply because I really hate them that much and will actually be in a life threatening situation because of that. I alway come away ****** off, broke and bruised from one end of each arm to the other because no one there can even draw my blood without blowing atleast 5 veins. As much as they charge for your care in an er, why can they not get qualified people to work there?

:::hopping off her soap box::::

Erin
Dallas TX

 
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Old 08-18-2007, 01:34 AM   #2
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Re: ER experiences that make you go hmmmm.

Hi, Erin. Yikes! Truly awful! During my last annual physical, my brand-new GP commenced with a diatribe. I couldn't possibly have lupus (she could tell just by looking at me), and I needed to get that idea out of my "little head". She knew "my kind" and she was SICK of it. Ordered me to sunbathe, so she could see if I got a rash. Refused to take a medical history: she'd be the only judge of what I had. More in this vein, then the HOWLER: accused me of lying about my age, that I had to be YOUNGER than claimed. So I demanded, "Just how many women in my age bracket want to be taken as OLDER than they really are?"

Until I read your post, I was vain enough to think that I led the pack in the AWFUL MEDICAL APPOINTMENT department. No. Your ER visit takes this (dubious) prize. You must have had fire coming out of your nostrils! Poor you---I hope you've fully recovered from the shock of it. Smiling but shuddering, Vee

 
Old 08-18-2007, 04:42 AM   #3
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Re: ER experiences that make you go hmmmm.

Hi Erin,

I'm so sorry you went through that! If I had a knee swollen to the size of a melon would I want a lecture about my diet? What is wrong with some of these people? It amazes me how anyone could go into the medical profession lacking any type of bed-side manner. I posted earlier about my visit with my new rheumie -which I have decided to change after one visit.

She wouldn't shake my hand. She dressed like she was ready for the catwalk and then proceeded to lecture me on how she didn't think I had lupus, but that I had some type of connective tissue disorder, blah, blah, blah. However, according to my tests I should avoid sunlight and that I would have high risk pregnancies. Oh, and if I did have lupus it was a mild case.

I didn't speak up because I was so ****** and shocked. I think you were not only correct in speaking up but brave to do so. I know it is impossible to change someone else but at least you stood up for yourself and could read through the crap she was giving you.

I hope you feel better soon and my prayers are with you. Stay strong!

 
Old 08-18-2007, 07:57 AM   #4
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Re: ER experiences that make you go hmmmm.

Gee Guys! What a bunch of brain dead morons we have in the medical community these days......Making a good Dr. more valuable than solid gold. Here is another unbelievable story.........A couple of months ago I caught a cold, it rapidly progressed to pnuemonia (I have had this happen several times before) I tried to get an aptt. with my regular primary care Dr......wanting to save some money rather than head to the ER. Primary care Dr. was busy so i had to see a physician assistant.....By this point, my lungs are really tight, full of crud which is not moving, and I can't breathe well enough to have a normal conversation. I tried to tell the Dr. what is wrong when he cuts me off mid sentence and begins this lecture about my overuse of steroids, and how they are dissolving my bones and how I need to lose weight in a hurry (I am 5" 10" and 150 lb., welll within normal.....he is 5' 7" and about 320). I manage to squeak out that I have a very active case of SLE.....he then says "well, your care is pallative at best, by the way, my wife died at 43 of SLE". As if I needed to hear that.......I'm thinking to myself...."what you let her suffocate too?", all I could get out was "Are you SURE it was the Lupus?" He barely listened to my chest, didn't order any x-ray etc... and let me know that he was reluctantly prescribing anti-biotics for me.......implying, that he was humoring me. I told my rhuemy what happened and she laughed and said "that is why I don't hire Physician Assistants to work in my office"
VEEJ, your new GP was just jealous because you look so fab compared to her!
Angie, lets hopr the Dr. you saw fall off the catwalk soon lol!
Erin, what a horror story! I tend to agree with your mom......I have always been a health nut, excercising, eating organic, watching my junk food.......my brother is the exact opposite.....guess who is healthier.....my brother is as healthy as a horse, if he gets a cold (very rarely happens) he thinks the end is near because he is so seldom ill and has no idea how to handle it

 
Old 08-18-2007, 12:19 PM   #5
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Re: ER experiences that make you go hmmmm.

Quote:
Originally Posted by VeeJ View Post
Hi, Erin. Yikes! Truly awful! During my last annual physical, my brand-new GP commenced with a diatribe. I couldn't possibly have lupus (she could tell just by looking at me), and I needed to get that idea out of my "little head". She knew "my kind" and she was SICK of it. Ordered me to sunbathe, so she could see if I got a rash. Refused to take a medical history: she'd be the only judge of what I had. More in this vein, then the HOWLER: accused me of lying about my age, that I had to be YOUNGER than claimed. So I demanded, "Just how many women in my age bracket want to be taken as OLDER than they really are?"

Until I read your post, I was vain enough to think that I led the pack in the AWFUL MEDICAL APPOINTMENT department. No. Your ER visit takes this (dubious) prize. You must have had fire coming out of your nostrils! Poor you---I hope you've fully recovered from the shock of it. Smiling but shuddering, Vee
oh...Vee... lol.. dont they just slay you!!! I had a neuro tell me when all of this started that short of an autopsy they couldnt find out what was wrong. That was ofcourse when all of this started. I did fire him. I wasnt signing up for that test. But this was a neuro. most specialists are condescending and jerks. When you find a good one, you had better hold on tight.

What is funny is she prescribed me levaquin and lortab for pain like she was handing me something that she felt I didnt need. ...lmao...and I didnt. I called my rheumi the next morning (always ask if I should go off meds for antibiotics) and he said NO. I sent him my blood work from the ER and he said that the increase was more likely from inflamation and if she had ran the CMP the sed rate would let her know that. As for the lortab... I told her already that I was taking vicodin es for pain and had taken 3 that day which really wasnt helping much. I doubt a lower dose of pain meds would help. To be honest I didnt really think any pain meds would help at that point, the pain was so deep....lol... I even told her I was only there for one reason, to make sure I didnt DIE from this...other than that I had no use for ER's. (or er wannabe dr's for that matter!)


LOL.. on top of that, last night I tried to look up this wonder doctor on the internet she told me about and there was NOTHING. I couldnt even find him.

I live in Mesquite TX and we have two hospitals and they are both awful. I usually will never use them for this type of reason...just really bad experienced with them. I will usually go to Baylor Hospital (which is where my rheumi works out of) but it is downtown and I didnt want to be leaving there at night walking at a snails crawl which a sign saying please mug me! so I went close to home.

I hadnt been there in years and they had changed names and ownership so I had hoped it would be better. I was wrong. I went there about 10 years ago. I walked in knowing what was wrong. I knew I had meningitis, my sister had had it years ago. I had all of the symptoms including not being able to turn my head. They ofcourse didnt believe me and sent me back out to the waiting room for 1 1/2 hours with a full room of people for me to infect. When the LP came back and lo and behold I had exactly what I told them I had they finally put me in isolation. By then I was so out of it all I could say was "told you".

Yet, I went back there. I have to take some responsibility for this too.

Erin
Dallas TX

 
Old 08-18-2007, 12:37 PM   #6
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Re: ER experiences that make you go hmmmm.

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Originally Posted by Angie10 View Post
Hi Erin,

I'm so sorry you went through that! If I had a knee swollen to the size of a melon would I want a lecture about my diet? What is wrong with some of these people? It amazes me how anyone could go into the medical profession lacking any type of bed-side manner. I posted earlier about my visit with my new rheumie -which I have decided to change after one visit.

She wouldn't shake my hand. She dressed like she was ready for the catwalk and then proceeded to lecture me on how she didn't think I had lupus, but that I had some type of connective tissue disorder, blah, blah, blah. However, according to my tests I should avoid sunlight and that I would have high risk pregnancies. Oh, and if I did have lupus it was a mild case.

I didn't speak up because I was so ****** and shocked. I think you were not only correct in speaking up but brave to do so. I know it is impossible to change someone else but at least you stood up for yourself and could read through the crap she was giving you.

I hope you feel better soon and my prayers are with you. Stay strong!

Angie,

lol... I stood up, but had I not felt as bad as I did it could have gone either way. I would have either let her have it really good or would have just sat there dumbfounded.

I have heard the line you got too... I can even tell you where her info came from. You must be RO SSA positive which would be why the pregnancy would be high risk.. I am too...it causes neonatal lupus in newborns from Ro positive mothers and photosensitivity. LOL... the irony is, you do have a connective tissue disorder. It is called LUPUS. Lupus IS a connective tissue disorder lol... that being said, you may have a milder form with overlap. That is something that will play itself out and takes a while to completely evolve. Mine did. I have SLE (started out RO positive, but now ANA and positive DNA as well but I also have other overlaps too. Usually this does make them all milder, mine just isnt. Atleast right now. Hopefully, it will all calm down and become that way soon. My doctor did say that with RA and Scler the first few years are the worst so maybe it will get better soon.

If they would just read up on what they are saying it would be helpful. How can we rely on THEM if they wont do the research that we do. My rheumi actually gave me a printout the size of a book to take to my GP so he would be familiar with my condition. I was worried it might tick him off but it didnt. He has been my GP since I was a teenager so it is a bit of a different situation. My GP said I had a good rheumi and I agree. Mr rheumi said that GP's know a little about a lot and are sometimes not familiar with the details that are involved in some conditions like mine.

However, I wouldnt suggest this with the catwalk woman. She doesnt strike me as the type that would appreciate this. Afterall, she already knows everything right? She has it all... looks, wardrobe, education, money and clean hands!!

Erin
Dallas TX

 
Old 08-18-2007, 12:52 PM   #7
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Re: ER experiences that make you go hmmmm.

Quote:
Originally Posted by realisticchic View Post
Gee Guys! What a bunch of brain dead morons we have in the medical community these days......Making a good Dr. more valuable than solid gold. Here is another unbelievable story.........A couple of months ago I caught a cold, it rapidly progressed to pnuemonia (I have had this happen several times before) I tried to get an aptt. with my regular primary care Dr......wanting to save some money rather than head to the ER. Primary care Dr. was busy so i had to see a physician assistant.....By this point, my lungs are really tight, full of crud which is not moving, and I can't breathe well enough to have a normal conversation. I tried to tell the Dr. what is wrong when he cuts me off mid sentence and begins this lecture about my overuse of steroids, and how they are dissolving my bones and how I need to lose weight in a hurry (I am 5" 10" and 150 lb., welll within normal.....he is 5' 7" and about 320). I manage to squeak out that I have a very active case of SLE.....he then says "well, your care is pallative at best, by the way, my wife died at 43 of SLE". As if I needed to hear that.......I'm thinking to myself...."what you let her suffocate too?", all I could get out was "Are you SURE it was the Lupus?" He barely listened to my chest, didn't order any x-ray etc... and let me know that he was reluctantly prescribing anti-biotics for me.......implying, that he was humoring me. I told my rhuemy what happened and she laughed and said "that is why I don't hire Physician Assistants to work in my office"
VEEJ, your new GP was just jealous because you look so fab compared to her!
Angie, lets hopr the Dr. you saw fall off the catwalk soon lol!
Erin, what a horror story! I tend to agree with your mom......I have always been a health nut, excercising, eating organic, watching my junk food.......my brother is the exact opposite.....guess who is healthier.....my brother is as healthy as a horse, if he gets a cold (very rarely happens) he thinks the end is near because he is so seldom ill and has no idea how to handle it
Oh man, I would have been so ******. LOL.. Had he been the guy in my er I might have really gone off! That is the kind of guy I would have wanted to kick is a** with my good leg!!!! At 320 at 5'7!!! No wonder he is so full of himself!

I have a brother like that too. I mentioned the cardomyopathy problem in my family. It is hereditary and the boys are at much higher risk. My brother is the only boy in the next generation. (it whiped out my mothers, she is the only surviving child) so all of this time we were worried about him. He has echos every year and all of that. Now..you have to keep in mind that he is 6ft 7 and all muscle. He climbs mountains and his last cardio said he has the heart of a 25 year old athlete and he is 47! All these years we have been worried about him.

Erin
Dallas TX

 
Old 08-18-2007, 02:45 PM   #8
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Re: ER experiences that make you go hmmmm.

Erin, That neuro said, "...short of an AUTOPSY..."??? That's the snarkiest doctor quote I have ever heard! Forgive me, I'm laughing & gasping at the same time. HORRIBLE! Anyway---are you feeling any better now? I do hope so, kiddo. All my best to you, Vee

 
Old 08-19-2007, 04:52 AM   #9
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Re: ER experiences that make you go hmmmm.

I kid you not, my mother and husband were there too. When I told my rheumi he just looked at me dumbfounded since they knew each other from both working with Baylor. I was sitting in the chair hooked up to an iv drip of solumedrol and could not get out of the chair on my own. So you can imagin my frustration. This was when it all first started so I was just a babe in the woods with this crap. lol I think now I would be able to handle it all better, or atleast I hope so.

Sometimes they just dont think! lol...

Erin
Dallas

 
Old 08-20-2007, 03:01 AM   #10
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Re: ER experiences that make you go hmmmm.

I got a good one, I was just in the ER a day ago,

After a blood clot was ruled out ( I have APS) and DX with Pneuomonia, the DR.
stated "found Anphetamines in your blood, you a meth user?" I said "what?"
you know what I am talking about " speed, crystal, crack?" I then said" try "Adderall XR, its on my intake sheet" He replied offering no apology and said
"oh, I didn't notice that". What did he mean he didn't notice? Thats being real thorough, What is the new medical licensing exam, holding a mirror under their nose to check to see if there breathing?

My GP is not too bright either, I don't even know, should I be taking Adderall with APS? I think I am going to look in to this

 
Old 08-20-2007, 04:55 AM   #11
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Re: ER experiences that make you go hmmmm.

Just want to say that this thread is a corker. Catherine, I'm taking a small mirror to all future appointments. Hugs for you all, Vee

 
Old 08-20-2007, 10:55 AM   #12
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Re: ER experiences that make you go hmmmm.

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I got a good one, I was just in the ER a day ago,

After a blood clot was ruled out ( I have APS) and DX with Pneuomonia, the DR.
stated "found Anphetamines in your blood, you a meth user?" I said "what?"
you know what I am talking about " speed, crystal, crack?" I then said" try "Adderall XR, its on my intake sheet" He replied offering no apology and said
"oh, I didn't notice that". What did he mean he didn't notice? Thats being real thorough, What is the new medical licensing exam, holding a mirror under their nose to check to see if there breathing?

My GP is not too bright either, I don't even know, should I be taking Adderall with APS? I think I am going to look in to this
omg!!! unbelievable...what is funny is they had to actually run a tox screening for that! When I had my son I had someone from social services come visit me saying I tested positive for amphetamines too... I told her it was sudafed ( I had a cold and that is what my ob/gyn said I could take)..she said no, that would be a barbituate. I said I don't really care what the f** it is, rerun the test or talk to a pharmacist, but I do NOT take drugs...she came back an hour later and apologized. Apparantly Sudafed does test positive for amphetamines... what kills me is that they even tested me for it!!!

I think maybe they are using the mirror for their own drug use!

Erin
Dallas TX

 
Old 08-20-2007, 11:52 AM   #13
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Re: ER experiences that make you go hmmmm.

Erin, again! I never knew what a wicked sense of humor you have---how had I missed that? It's bracing to read these posts, as a reminder not to lose humor---or backbone. My best to everyone, Vee

 
Old 08-21-2007, 07:37 AM   #14
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Re: ER experiences that make you go hmmmm.

Ok I am new to the boards but I couldn't help repling to this post. They really are idiots in the ER. I hope that you all are getting better.

I had to go to the ER cause I couldn't get into any of my doc's, none at all so off to the ER we go. I was having severe pain in my ear that would shoot out in all directions from my ear. So off I go and I tell the nurse what all I have been diagnosed with and my meds, I just keep a sheet with me with all of them since there are alot.

This doc comes in whom I have known a long time and he has always been good treating people in the ER. I told him what I told the nurse about my things wrong with me. Here is his reply "The ER is not the place to come seeking answers for what ails you we are here to just treat what is bothering you right at the moment". I was like I realize that but I thought you would like to know what is going on with me to see if this is connected to any of that. Again he berated me about the ER's responsibility.

I then told him I had an appointment to go to Mayo's clinic and again here is his response, " If you can't afford to come here or see you other doc's how in the heck are you going to pay for Mayo's". Well none of his business which I told him then I said can you fix my ear and get rid of this pain so he prescribes a steroid 40 mgs of prednisone. Nothing to get rid of the pain right then oh no that would be against his policy to help treat that. I hate going to the ER. I hate going to my doc's. Ok, thanks for reading and I hate to rant most of the time but when you hate your doc's what do you do. We live in a very small community and only one place to go to your doc's and only one hospital to go too.


Thanks,
Deyene61

 
Old 08-21-2007, 10:42 AM   #15
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Re: ER experiences that make you go hmmmm.

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Erin, again! I never knew what a wicked sense of humor you have---how had I missed that? It's bracing to read these posts, as a reminder not to lose humor---or backbone. My best to everyone, Vee
For me, it is the only thing that keeps me going sometimes... You can be in the most severe pain and if you can find a way to laugh, it will actually help the pain, if only for a few minutes. If you cant beat it, laugh at it!

Erin
Dallas TX

 
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