I have only just seen your post. Normally if a member has gone through things and is able to discuss it, you will get a reply quickly. I personally have lots of other medical problems going that prevent me from coming here as frequently as I would like to. I am sure the other memebrs have difficulties at times too, this is why things are not always answered quickly. I will do my best to help you on this one now though.
It can be difficult to answer questions of a specific nature, as these are normally dealt with by doctors who deal with lupus patients and have expertise in the condition. I have had SLE for well over 30 years and I also have amongst other things APS. I have tried below to do my best to give you some answers as a patient not as a doctor. Any specific questions should really be addressed to a doctor concerning this and anything that proves to be frightening for you. As I said I have had APS for many years and I thought the information I am giving below would be an assurance that the prognosis is not bad. I hope it will put your mind at ease.
Because you have lupus it doesn't mean that also have APS. Nor does it mean that APS will 'turn' into lupus. The chances of having one are probably a bit higher than average if you have the other. They are in themselves distinct conditions and whilst they often many people have one and not the other. The diagnosis for either requires specific clinical evidence, not just antibodies found in laboratory tests.
There are two different forms of APS. There is primary - meaning it is an illness on its own. Also there is secondary - which means there is also another problem going on which for many patients means they have lupus too.
As far as treatment goes, some doctors recommend aspirin therapy, but, generally, no major lifestyle changes are necessary. For patients who have the antiphospholipid syndrome and have had a blood clot, treatment consists of anticoagulant therapy which are known as 'blood thinners'. This is 'normally' Warfarin/Coumadin and specific care has to be taken when having this. This is the most commony used treatment for the prevention of blood clots. Regular checks have to be made to keep a check on levels of clotting of your blood.
If this treatmetn is iven then there are things that you have to be careful about which are important. One thing is to make sure that you don't get too much vitamin K for instance as this will thin the blood. Normal portions of Vit K containing vegetables and so on are ok, but you shouldn't have huge portions. Cranberry juice should also be avoided, I found this out recently. There are do's and dont's with the treatment but regular visits to the blood lab will keep things up to date and on an even keel. There are things that need to be done to keep the risks low of blood clots. These must be discussed with a doctor though.
To summarise - thank goodness for that I hear you say - having APS will not neccessarily shorten your life. There will have to be changes made to your life yes, and it is up to you basically how you keep to these changes and work with the doctors in implementing them. The changes will not be restrictive in any great way, but they are worth it believe me. As I said earlier, these things should be discussed with your doctor.
I have had major heart attacks, open heart surgery and blood clots in both my lungs and a dvt in my leg, all in the last 3 1/2 years, but I am still here. I was advised to make these changes and I am doing ok.
Sorry this was so long, but I wanted to put your mind at rest. Carry on carrying on my friend, you will be ok. Keep on coming back, we will answer your questions as and if we can.