No sweetheart you are not going to die. I have had SLE for well over 30 years and I am still here and getting on with things. When I was first diagnosed there weren't the medications there are now, even less was know about SLE and I realised that this was something I was going to be dealing with and I thought "well, I know I will be changed by what is happeneing to me, but I will fight to do the best I can". What I mean is that once I and my parents knew what was going on, we worked together with the medical teams of course to enable me to have a full life. Some of the things I had to go through seem quite barbaric now, but at the time it was the only way to go. Now there are things I cannot do, but the things I can do I try my best to do well because I am determined to.
I have other illnesses and disabilities and I help others with the same things going on, or I hope I do. I only started to speak to others about SLE about 2 1/2 years ago here, and it is the best thing I have done. I hope I can help others here and indeed I am helped just by knowing that there is someone else who understands me. It is good to talk about your feelings.
There are so many wonderful treatments now and so many medications and help. Plus the fact that the love, care and concern from people on this forum will be invaluable to you, they all know exactly how you feel whether it is scared, lonely, upset. A lot of times too you will be happy and so glad that you are here with us because we have all been where you are at the present time.
Lean on us, ask us any questions and we will do our best to answer them and give you a big hug whenever you need and want one.
Take care my love