Kimberley, Hi & welcome. Obviously I'm only a patient, but what you posted did rings bells with me. But first, I'm not sure what's meant by an "ANA pattern" being SSA/Ro. I've read that ANA patterns are such things as homogeneous, speckled, and rimed.
However, from how you phrased it, your labwork is somehow suggesting anti-Ro is positive, right? This is an autoantibody that is seen in several autoimmunes: (1) in lupus (very often in the SCLE "subset" & also sometimes in classic SLE, too); and (2) in Sjogren's syndrome. FYI, you could use the SEARCH BOX in the upper left corner of this screen to search for more on SLE, SCLE, and Sjogren's Syndrome.
Where do you hurt? Do you get rashes, particularly after exposure to sun? Were there any other bloodwork abnormalities that you spotted?
I had many yrs. of episodic problems (GI, migraines, joint pain, anemia, urinary problems, fatigue, hair loss, weight loss, etc.) After many yrs. of this nonsense, I started getting recurrent targetlike, nonscarring arm/torso rashes. But even then it took some yrs. for my bloodwork to show that I'd turned positive for anti-Ro; and deep skin biopsies with immunofluorescent stain tests proved that my rashes were "lupus-specific".
My end result: I was Dx'ed with subacute cutaneous lupus erythematosus (abbreviated SCLE), which tends to be a somewhat milder form of SLE in many people, with the odds of major organ involvement thought to less than in SLE. Major photosensitivity is common in this type of lupus. (I do have to be very careful to avoid sun---and hate that!)
As for meds: where there is no major organ involvement (kidneys, CNS, heart, lungs, etc.), the DOC is for lupus is Plaquenil, an antimalarial. (By lupus standards, this medication is considered the mildest, by the way.) Many people also take anti-inflammatories for additional pain relief.
I did NOT have classic symptoms of Sjogren's, such as dry eyes & mouth; so I never had tests for it. FYI, some people DO have both Sjogren's and lupus.
Perhaps the most important points, though, is that these diseases are treatable, that many people remain reasonably mild, and that a good rheumatologist can make all the difference if you do end up with a Dx in this ballpark. So until you can see this specialist, you hang in there, OK? Yes!
I'll stop here for now. I hope others chip in soon---we do have others here who've also tested positive for anti-Ro. And post more when you can, OK? Bye for now. Sincerely, Vee
I am sorry it took so long for me to get back in here. I haven't been myself lately. (honestly I don't know who I am anymore )
By the time I got to my rheumatologist appt. I was so sore it hurt just to move. I am still there. I have had another blood test done and will get the results on Monday. In the meantime I have started on 200mg of Plaquinil and 5mg of Prednisone 2x a day but was informed that pending the outcome of the recent blood test my medications may change.
In the meantime, I hurt so bad. My fingers, wrists, elbows, hips, knees, feet, you name it, it hurts-and I am sooooooooo tired and feel heavy as if I am carrying around lead weights under my skin. My stomach hurts and I am having a lot of discomfort after eating (have a really sore area underneath my right lower ribcage).....I just don't want to eat right now only to endure an upset stomach afterward, so I am also loosing weight (seems a bit fast though)
Ok, on a lighter note....my family is calling me T-Rex as I carry my hands up over my chest to help alleviate the pain in my shoulders (which are about to fall out of their sockets) I mean, come on, that is kinda funny....have to find some humor in all of this.....
I haven't felt any relief as of yet and am hopeful that soon I will....is so frustrating sitting around hurting so bad. I have two young children (ages 5 & 7) who require attention and I feel like I am less of a mom right now. I want to be able to sit on the floor and play legos/barbies, videos or whatever the kids are wanting to do. ding dang it! It is an eye-opener to how fortunate I WILL BE once this all settles down.
Hi, Kimberley, I just want to wish you luck with your appt. on Monday.
Also, about PLAQUENIL: when your rheumie re-evaluates your meds, if you stay on it, know that it can take upwards of 4-6 months to reach full effect. You could ask your rheumie for his "quesstimate".
About PAIN: I take Advil as needed, in addition to the Plaquenil. You may want to ask if some OTC is an option for you. (I'm not sure on this, in that you're also taking Prednisone.)
About SUN: People with anti-Ro are often horribly photosensitive. But while I HATE avoiding/blocking sun, the improvement was so great that it's a no-brainer for me. You may want to be sure your rhemuie covers this pt.
Anyway, here's hoping you have a VERY helpful appt. & are turning the corner! Best wishes to you, Vee (P.S. T-Rex! Awful but funny! )
I have had bad antibodies for 3 months it took 2 months to get into see thr Dr. I dont know what's going on now. The doctor said he has never seen antibodies so high and no physical signs before.My ANA is 1483,
Anti-DNA (DS)ab qn--102
I know this isn't good but he doesn't know what it's all about either.I'm afraid to take something and not know what I have wrong....HELP