Just got back on herre myself after being unwell for a while. Pleased to meet you.
I just wanted to say that I know absolutely how you feel about loneliness. I have had SLE for over 30 years, so I have 'grown' up with it. I have other serious medical problems and disabilities going on and sometimes get very frustrated. I had to stop working, which I miss tremendously, not only from the monetary aspect of it but for the company I had each day. I don't have that company now. I spend a lot of time on my own and it does get very lonely at times. My husband though, like yours, is absolutely wonderful. He supports me in everything I do and helps me in every way he can. I know if things were the other way around, I would do the same for him.
I don't get out much because I can't walk too far and to go shopping is a no no for me, and when I do go out it is with my husband as I don't drive. I am though independent as much as I can be as I don't want him to feel that he has to be worried about me all of the time. I honestly know that my husband does what he does because he wants to, not because he 'has' to.
I don't get any monetary help either, because my husband goes out to work and ridiculously my needs are not taken into account as an individual, they assess monies coming into the home as a joint income. Makes me so mad.
Thing is Indra, here you have found a wonderful place. We all have lots and lots of time, patience and understanding and we offer it to each other. Whenever you feel down in the dumps, come here and vent or laugh and cry, we will be here for you when you need us.