Hi, again. My rash started as papules (red raised areas), on upper arms & back, which came & went for 4+ yrs. Then those same papules would reappear then expand into perfect circles, then further expand outwards & lose their circularity. Towards the end, I could have 10-15 on each arm, several in underarm area, and some on back. They cleared without scarring.
You can finds pics of both types of SCLE rashes, if you look: annular & psoriasiform. Mine were the annular form.
I'd had health issues from early childhood, incl. most of the things Dr. Hughes lists as being common in people who later develop lupus (see the "alternative criteria" sticky post at the top of the Board). In my 20's thru 40's, new problems appeared non-stop: chronic fatigue; irritable bowel (chronic); migraines; urinary problems, incl. UTI's and stones; cystitis; joint pain and swelling; sciatica; low-grade fever; breakage along hairline; weight loss; and B-12 anemia. The rashes were actually the LAST to appear.
After numerous dermies & other specialists (urologists, gastroenterologists, rheumies, etc.), I took my sorry self into a respected Manhattan rheumie practice. They could not BELIEVE what they were seeing, as it seemed so obvious to them. But of course they did tests to confirm, i.e., bloodwork, urinalysis, and one last deep punch biopsy (by a dermatopathologist).
On my bloodwork, anti-Ro had finally turned positive. (Maybe it had been positive before but hadn't been caught at the right time?) FYI, anti-Ro correlates with SCLE or Sjogren's, or both. It's also sometimes seen in people who are classified as having SLE.
My last skin biopsy was a fascinating experience. That dr. had me contact my old labs & ask them to send to him my old skin reports & leftover skin samples. (Who knew labs kept old skin???) He performed immunofluorescent stain tests on all samples, old & new; and found all but one "grossly positive"... Meaning he found evidence of lots of "immune junk" deposition at the dermal/epidermal junction, vacuolar alteration, and those "lines" seen in immunofluorescent tests that are characteristic of ONLY lupus rashes.
Why I think my local drs. didn't diagnose me: I believe only ONE, my last GP in a long line, was thinking LUPUS. He sent me to other specialists who got their kicks berating me & failing to do the tests I later learned were the gold standard (e.g., immunofluorescent stain tests). Interesting, too, that almost all failed to take a lifetime medical history. More than a few told me to see a therapist. One, chief of dermatology at a large city hospital, told me to get rid of my dog! (Fat chance.) Bottom line? My local drs. were 20+ years behind, as the SCLE subset of SLE was first differentiated in 1978!
I've taken Plaquenil for over 7 years now & avoided sun (
to that). I'm down to only a few problems: episodic fatigue & pain. But that sure beats the endless up's and down's I had since childhood.
Anyway, that's why I have the SCLE form of lupus, not Lyme...
Oh, the antibiotic did to me what they always seem to do: upset stomach & nausea. And, yes, I had tingling, especially in my arms, it seemed, near the rash areas. Felt like little critters scampering under the skin surface.
What about YOU? Do YOU suspect that you have Lyme? Or lupus? Or something else that can bring on similar problems? Do you have recurrent rashes? What kind of drs. have you seen? What tests have they done? By the way, another reason I was pretty sure I couldn't have Lyme was that my rashes kept recurring; that made me think it just had to be something else, but I had no idea WHAT!
I hope this is what you are after. Give a yell anytime, OK? Best wishes, Vee