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Old 09-16-2007, 03:02 AM   #1
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Join Date: Oct 2005
Posts: 626
Pika HB User
Body is producing wrong cells?

Hi, I'm new here and I don't know am I in the right forum or not. I haven't been diagnosed with Lupus yet. Dr says it could be my body produced cells to damage my own organs. When I look into the symptoms board, I got most of it so I hope someone can help me here.

Dr doesn't want to see me again but she asked me to do some blood tests.... A bit silly, I wonder where to ask people to interprete the blood test results?So I leave the scripts at home.

Is Lupus - body produced cells to damage own body's organs? Could someone direct me to this kind of forum? Is it a dead sentence of this kind of diease? Appreciate any help.

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Old 09-16-2007, 04:39 AM   #2
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kdel HB Userkdel HB User
Re: Body is producing wrong cells?

Your doctor tells you this and then doesn't want to see you again? If I'm getting this right you really need to find a new doctor! I have never heard of such a thing Please get copies of all bloodwork results and a copy of the notes of the visit with this doctor and take them to someone else. If you have lupus and it depends on what kind then yes your body does turn against itself and in some forms can affect your organs however there is medication to help you. There is no cure but it is not a death sentence!
Please get far away from this doctor and go see a rheumotologist.

Old 09-16-2007, 01:00 PM   #3
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Re: Body is producing wrong cells?

Pika, Welcome! Yes, lupus is one disease in which your immune system erroneously produces antibodies against your own cells. But there are others, like rheumatoid arthritis, scleroderma, autoimmune hepatitis, etc., etc.

There are three "sticky posts" (permanent posts) at the top of the thread list that contain simplified info. One lists 11 criteria; some are symptoms and some are test results. To be Dx'ed with systemic lupus (SLE), a person generally meets 4 or more, not necessarily all at once. And there are OTHER, typically LESSER forms of lupus, called "subsets", for which a person can meet fewer than 4 criteria: DLE, SCLE, DILE, and neonatal, to name a few.

One blood test result is NOT diagnostic for lupus, by the way. For example, people with a positive ANA may right away look along the lines of lupus. But actually, ANA can be positive in a variety of diseases, not just lupus; plus even if ANA is positive, it would be only ONE criteria met. Further, sometimes ANA is positive simply due to a passing virus, or because of a family tendency.

Also, the SEARCH BOX in the upper left of the screen can lead you to more detailed info on lupus.

And I'm puzzled, too, like you & Kdel! Where did your dr. want you to go to have bloodwork done? Were you given the name of another dr., maybe a specialist? Or does she intend to see you again after the labs come back? If she didn't make it clear, you should call for clarification!

How have you been feeling in general? Do you know on what she based her thought that you may be producing antibodies? (Just curious.)

I hope you post more when you can. You'll have plenty of company here. Bye for now. Best wishes to you, from Vee

Old 09-17-2007, 04:33 AM   #4
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Pika HB User
Re: Body is producing wrong cells?

Kdel & Vee. thanks for responding my post.

I'm very confused. It seems my symptoms also found a lot in MS. Although you're saying is not a death sentence but it applied a life "sick sentence" for both types of these disease.

She ordered the blood works through a franchise lab. (The lab which is in every suburb with the same name. Like MacDonald, KFC or Pizza Hut) No, she didn't refer me to another doctor. She left me in pain. She said she'll call if anything wrong. But she didn't say that I can call if pain didn't go away. She clearly told me that she don't want me to go back and see her.

Very unwell, coffin is quite closed to me which is not far away! Start with.... She gave me a big bag of Iron infusion. After one month, all counts were going up which is good. The dizzyness and tireness which is more severe. After 3 months from a good count, she wants to review again. Which my ferritin was a hugh dropped to boderline low. Platelets was out of range (low side). Liver function test failed (ALT, AST and ALP are above the range in high side). And I think my heart is in traffic jam. Apart from these, I also developed diabete, high cholesterol and GI problem. Other symptoms that I got she never knows because I didn't and never mention to her. I suppose she base on the above only.

I hope she is wrong and I'm wrong too. It is all Verapamil fault!

Old 09-17-2007, 06:40 PM   #5
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Re: Body is producing wrong cells?

Pika, Hi, again. More thoughts & wuestions---

(1) Does your dr. think Verapamil caused your liver values, platelets, iron levels, etc. to go off? If so, have you STOPPED taking it? FYI, there is a kind of lupus called "drug-induced lupus erythematosus". You could find more on it by using the search box (upper left of screen): type its abbreviation = DILE.

(2) Maybe you can just DEMAND copies of your lab results? I'd try, if I were you. The dr. doesn't have to see you---you just have to drop in & pick up the copies.

(3) Is this a clinic or HMO, where you can ask to see another dr. instead? Or is there someone else you know who uses the same place who can advise you? And, is there an "800" phone number to call?

We're looking forward to seeing your next post. Meanwhile, thinking of you... Best wishes, from Vee

Last edited by VeeJ; 09-17-2007 at 06:40 PM. Reason: spelling

Old 09-20-2007, 04:25 AM   #6
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Pika HB User
Re: Body is producing wrong cells?

Thanks for answering my post. How you've been?

Verapamil which was the first sign to cause my early fatty liver. I stopped it before the ultrasound (2005). 2007, I was in Fluvastatin and metformin, my gastro dr said I need to take Nexium again. Nexium went into the pills mix..... After about two or three weeks then my upper right abdomen pain. My GP allowed me to stop all the med. Then I went back and checked my blood test result. Only the liver and platelets are a bit out of range. Iron is dropping but still have some to spare. She might be angry of me didn't take the Nexium. So she said I don't have to go back!

I got all the copies of the lab result. She is in the hospital consultation suite. I like her. She is much more better than my first gastro Dr. Amongst so many drs, I think she is the best one. How I'm going to ask her "What I did wrong? Why don't want to take me?"

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