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Old 10-06-2007, 05:30 PM   #1
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lynn40 HB User
Lupus question...please help

I seem to have some symptoms of Lupus. I am so fatigued and ache all over. It's like I have arthritis in every joint in my body. My face had a redish rash some time ago.

Today something odd happened. I have always been a "sun lover." Have laid out and swam for hours on end. Today while sitting in the direct sun on bleachers watching my child in sports I developed the oddest rashlike red lines on my thighs. It was completely UNDER the skin not an acutal rash. Would this have anything to do with Lupus?

I have never experienced this before and it scared me. The red marks were gone within a few hours.

I also recently had a hs-CRP test done. It was thru the roof. 15.8 when 3 is considered high.

Thanks for any help.
lynn

Last edited by lynn40; 10-06-2007 at 05:32 PM. Reason: left out detail

 
Old 10-06-2007, 07:04 PM   #2
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VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Lupus question...please help

Hi, Lynn. Did the disturbance on your legs have a lacelike pattern? There's something called livedo reticularis, a vascular disturbance, you might want to check out using the SEARCH BOX (above left). I got that way, too, from sun.

Have you seen a rheumatologist? And, other than CRP, do you know what other tests were run? Anything that looks like lupus bloodwork, e.g., ANA, anti-ds-DNA, anti-Sm, anti-Ro, anti-La, anti-RNP, RF, etc.? Even though bloodwork *alone* can't diagnose lupus, it's an important facet of the overall investigative process. And sometimes test results may point to some "close cousin" of lupus...

It's a good idea to maintain a personal file of your test results, and to keep a brief log of what symptoms, when, how long they lasted, etc.

The three "sticky posts" (permanent posts) at the top of the thread list convey how systemic lupus is Dx'ed. It's complex. And there are variants called "subsets". For a deeper understanding, there are some excellent hardcovers in most libraries & bookstores; look for Dr. Daniel Wallace &/or Dr. Robert Lahita.

I hope you post again when you can. You'll find good company here, plus a lot of variety in our symptoms, etc. Bye for now, with best wishes, from Vee
(Dx'ed 7 yrs. ago with the SCLE subset, on Plaquenil, & avoiding sun)

 
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Old 10-07-2007, 07:22 AM   #3
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lynn40 HB User
Re: Lupus question...please help

Veej- I can't thank you enough for your helpful information. I have spent a hour online already looking up the livedo reticularis. So grateful for the help. I am thinking I need to schedule an appt. I would like to see a rheum. instead of my family dr. He is great and all, but I think I would like to talk to a specialist.

I also plan to look into some of the reading you suggested.

Thanks again Veej.

lynn

 
Old 10-07-2007, 03:52 PM   #4
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Re: Lupus question...please help

Lynn, I think you're smart to see a specialist. Many GP's simply can't keep up with new tests, what test results really mean, the lupus variants, the subtlety & changeability of symptoms, etc. (Not their fault, really, just the way things are.) It can take time to get answers, so don't think you're alone if that happens. GOOD LUCK! Let us know how you're faring, OK? Bye for now, from Vee

 
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