Re: Help do I have the symptoms of Lupus?
Hi & welcome. I had years of nonscarring & nondepigmenting rashes on my arms & torso, plus problems similar to your list. I was finallt diagnosed with subacute cutaneous lupus erythematosus (SCLE), which is seen as an intermediate form of lupus, falling somewhere between DLE (discoid lupus erythematosus) and SLE (systemic lupus erythematosus, which is the "classic" kind of lupus).
MY ANA stayed negative, which happens, I was told, in roughly 30% of people with SCLE. In SLE, in contrast, ANA is thought to be positive roughly 95% or more of the time.
I eventually tested positive for anti-Ro, which is the antibody most commonly seen in this "subset" of SLE. Most people with SCLE are horribly photosensitive, which I certainly became, but over a period of years.
There are two forms of SCLE-specific rashes. Neither forms tend to itchs, scar or depigment. The form I had is called annular, meaning targetlike. In its immature form, it can look like only small red raised welts. In its mature form, lesions are circles with clear centers, which eventually expand outwards and lose circularity, then fade. My rashes were limited to my upper arms & torso, but it's possible to have them on other areas.
The second kind of SCLE rash is called papulosquamous (or psoriasiform). Instead of circles, it consists of much smaller lesions, usually closely spaced.
I had fatigue, joint & back pain, severe GI problems (20+ years), migraines, urinary problems, hair loss, sciatica, and anemia. My rashes were the last problem to arrive, actually. Much to my frustration, my local drs. (GP's, dermies, rheumies, etc.) apparently had never heard of this kind of lupus. Looking back, I think they were thrown off my my negative ANA, and lack of facial rashes or scarring rashes. Plus, SCLE was only defined in 1978, so maybe they'd just not kept up on lupus.
I'm (obviously) only a patient. That said, in your shoes, I think I'd try to see a dermatologist or rheumatologist, instead of a general practicioner. Have you seen either?
I hope there's something here that helps some, and that you post more when you can. FYI, other people here have had non-facial rashes, too, & hopefully they'll also post back. Bye for now, with my best wishes, Vee