Well, my name says it all...selfdiagnosed!! Not really though
I did "self diagnose" Lyme disease this summer. Now that I have had over 3 months of antibiotics, I am no better. My rheumie says that any longer on the antibiotics would be considered quackery!
I thought I had found all of my answers in the Lyme diagnosis. But, henceforth, this isn't so.
Here is what happened when I started the Lyme treatment. I developed a blood clot in the arm where I was receiving the IV medications. Then they moved the IV to the other arm, and I developed a second clot! So, this led me to the hematologist who put me on coumadin until he can test me in April for the reasons why I clotted.
I then did my research and learned about Hughes syndrome. Also decided to take a trip down memory lane and see all the specialists again to see if anyone could pinpoint why I keep having the symptoms.
Neuro doc said not something they can find. So I headed to the Rheumie. There I got the battery of bloodwork - and here is what she found:
ANA "mildly" positive (not sure what that means)
Lupus Anticoagulant positive
Vitamin D "way too low" at 20 (doc said should be up over 32)
I can't remember any others...
Anyway, she started me on the plaquenil 1x per day for a few weeks and then I am to start taking it twice per day. She said it will take a while to feel better. How long?? Anyone know??
I didn't get a straight "you have lupus
" or anything like that. So, I am wondering is that it? She mentioned that I do have the sjogrens (sp??) and to ask the eye doc to write me for Restasis drops.