Re: Please Help!
Creativeone, Hello & welcome. I'm only a patient but I had severe GI problems for 20+ years, plus a whole raft of other recurrent problems. I saw a lot of doctors & didn't get any relief until I finally took myself to a teaching hospital rheumatologist.
I finally started to realize that my GI problems had started to "team up" with other, new symptoms. Moving along, to what you call IBD: do you mean inflammatory bowel disease (like colitis or Crohn's), or irritable bowel disease (so-called functional, with no evidence of inflammation)? Are you on any meds for it? If so, is there any possibility that your problems evolved AFTER starting meds? (Certain drugs can induce a lupus-like syndrome called drug-induced lupus.)
About seeing rheumatologists... Have you read the "sticky post" with the ACR criteria for systemic lupus? You must meet 4 or more of the 11, not necessarily all at once, to be Dx'ed with systemic lupus (SLE). For some variant lesser forms, you may meet fewer than 4.
Also, the "sticky post" on antiphospholipid syndrome (APS) may be interesting, given your very difficult history of miscarriage. My heart goes out to you.
About ANA: it's positive in multiple diseases. My understanding is that it doesn't prove or disprove RA, as I think RA has its own complex diagnostic criteria, something like 4 of 6 things...? Also, ANA doesn't prove or disprove lupus, either. People are more often ANA-negative in some of the lupus variants; but also maybe 5% or so in classic systemic lupus (SLE).
I hope you post more after reading those stickies. If anything really jumps out at you, I think you should try another rheumie, to try to get *someone* to explain your chronic joint pain, etc. Bye for now, with best wishes, Vee
P.S. I ended up being Dx'ed with the SCLE form of lupus, an intermediate form in which ANA is negative maybe 30% of the time. My local drs. were cleulessly looking only for "classic" lupus, so I didn't do at all well with them. The teaching hospital rheumie had a LOT more expertise to bring to my case.