PCP versus Rheumatologist
I was recently diagnosed with Lupus back in October of 2007 (about six months ago). When several of my symptoms matched and I had a positive ANA on my blood tests, my primary care physician at the time referred me to a rheumatologist. The rheum. diagnosed me with Lupus and Sjogren's, both fairly mild, put me on plaquenil, and shoved me back out the door.
Since then, I have been having a very difficult time distinguishing when I need to see my rheumatologist. I have had lots of wacky symptoms randomly pop up over the past few months. I am still getting used to having Lupus. As most of you know, Lupus can do some strange things to the body and it tends to effect everyone differently.
I am having a hard time telling if some of the symptoms I am having are Lupus related- chest pains, neck pains, face tingling, etc. I actually went to the ER tonight for it, and after a bunch of tests they sent me back home and told me to see my rheumatologist for further testing. No, I wasn't having a stroke and no, not a heart attack. The doctor at the ER told me it might be related to Lupus, but I'd need to talk to my rheumatologist.
So my question is- when do you guys see your regular doctor? And when do you see the rheum? How do you know what is what? How do you know if some of these bizarre things aren't Lupus related?
I have made a friends with a girl in my area who has Lupus and she sees her rheum. for everything under the sun- it's like he is her primary care physician. But I guess I don't feel comfortable doing that with my rheumatologist.
Last edited by sillygirl; 04-04-2008 at 12:52 AM.