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Old 04-15-2008, 04:47 PM   #1
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Sjogren's plus lupus

Hi there. I'm a lurker here on this board and I have a question I'm hoping you can help me with. I was diagnosed with sle two years ago and have several autoimmune disorders including Addison's disease, Graves, Raynaud's as well as positive antibodies to antiphospholipids and lupus anticoagulant. My rheumy has been saying for the last year that I also have Sjogren's but I have been telling him that I didn't think so because my eyes are bad due to the Graves ophalmology (use restasis and have ductal plugs for horrible dryness as well as double vision). Anyways, on my last labs he ran an RA titer which came back positive at 1,090 with <20 being negative. I called him up and he basically said it's that high due to the Sjogren's. Has anyone else heard of an RA titer being that high for Sjogren's? I was nervous about that meaning a possiblity of developing RA in the future (have arthritis from the lupus now, but plaquenil has helped tremendously with that). Maybe I should visit the Sjogren's board and see if anyone there knows too. Thanks in advance --Jenn.

 
Old 04-17-2008, 08:41 AM   #2
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Re: Sjogren's plus lupus

Jenn, hi. I've also read---in Dr. Wallace's hardcover lupus book, for one---that RF is very often positive in Sjogren's; but I've never read how high it is typically (sorry). Have you tried your library or bookstore for books specifically about Sjogren's, that maybe would state actual levels?

Also (just curious): Did your rheumie perform the most specific tests available for Sjogren's? e.g., Schirmer's test, Rose Bengal cornea staining, or the most accurate, a lip biopsy?

Wish I had more to offer, but sending you my best wishes, Vee

 
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Old 04-17-2008, 11:18 AM   #3
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Re: Sjogren's plus lupus

Hi Vee,

Thanks for responding. My rheumy hasn't performed any of those tests other than antibody ones. I have fairly severe dry eyes. I see the eye doc about every 3 months (had to see him yesterday to replace a ductal plug that came out) and I've been using the restasis drops for about a year for the eye issues as well. I don't have as much of the dry mouth problems, but I do get the pain in the parotid gland area off and on. Whenever I've mentioned my doubt to the sjogren's diagnosis, my rheumy has always said that I won't have all the symptoms because I'm already being treated for it due to being treated for the other problems I have. It's all confusing when things start overlapping each other! --Jenn.

 
Old 04-17-2008, 12:13 PM   #4
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Re: Sjogren's plus lupus

Jenn, Have you done enough reading to know whether the med(s) you take are appropriate for BOTH lupus & Sjogren's? If so, at least you'd be covered, whether you have Sjogren's or not.

FYI, I was anti-Ro positive, but I have only lupus, not Sjogren's. It can be positive in both conditions; and some people have either some people (as we know) have both. I take Plaquenil.

Best wishes & take good care. Vee

Last edited by VeeJ; 04-17-2008 at 12:16 PM. Reason: typo

 
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