I haven't seen a dermie yet, but your concern is my concern. Having yet another doctor look at me like a deer in headlights...dumbfounded!
Anyway, my non-skin related symptoms, which started when I was about 29 (6 years ago) are very consistent with Lupus and include CNS issues as well:
Painful or swollen joints - ankles and feet (especially in the morning), wrists and hands, knees, shoulders, and sometimes my hips
Muscle pain - all over, but especially my arms and legs
Muscle Spasms - all over (even at times in my vaginal area)
Chest pain upon deep breathing - this has happened a few times but not consistently over a long period of time (day or two)
Sensitivity to the sun - I dread the sun. Feels like it is burning when I am in direct sunlight. Very unusual since I used to love laying out in the sun.
Head Aches - sometimes I get pains in my head that fee like I have been hit with a blunt object. The pain comes from no where and is unexplainable.
Fatigue - I get very tired by doing the smallest things. Many times when I come home from work, I have to go straight to bed. (I also have nights where sleep won't come)
I also have these less traditional symptoms as well:
Involuntary movements and jerking of muscles in my legs, arms, face, fingers, toes, ankles,
Memory problems - I forget words, names, what I was just about to do.
Stomach pains - Sometimes, for no reason, I feel like my stomach is being ripout out from the inside. The pain comes and goes with no rhyme or reason
Bladder - for about two months now my bladder has been wacky...For a few weeks I felt like I needed a catheter because it felt like I had to urinate 24 hours a day. The past few weeks I have gone all day without having the urge to go at all. I go just becuase I figure my bladder must be full.
Bowel - For about a year I have been battling with bowel problems too ( I haven't mention this to the dr becuase I just realized I never remember to tell him). I often cannot make a bowel movement unless I message myself after urinating and even then I have to concentrate like I am telling my muscles to work with me. The strange part is that when I do feel the urge to urinate, when I wipe myself I notice that I have had bowel leakage as well. I think the leakage happens before I go to the bathroom, because I also have itching like there is a rash in my anal area.
What do you think? Could this all be Lupus related