Does anyone else have a rhuematologist who answers to everything..."lupus doesn't affect ____________ (insert body part here)." I swear I never know who to talk to about problems that come up.
I just recently started having some really yucky breast discharge and pain in my left breast. Went to OB/GYN. She was worried enough to send me for a surgery consult. Breast surgeon sent me for a mammo, even though she's not sure it will show anything. She was intrigued when I asked, "could this be lupus related." She felt I am showing signs of inflammation in the ducts of my breasts, and when you couple that with the 2 huge oral ulcers I have right now, the fact that I sleep 14 hrs a day, and my swollen hands and ankles, we both are thinking that a lupus connection sounds plausible.
I e-mailed the rheumy, only to be told, "lupus doesn't affect breast tissue." She did put me on prednisone, the wonder drug that works wonders.
Now, I've read up on a condition on the internet referred to as "lupus mastitis." So, if lupus doesn't affect breast tissue, how doe they come up with lupus mastitis?
It's all just a curious little game. It's up to us to synthesize the information that's out there. I believe that we all need to be blunt and stand up for what we want when we seek care.
Anyway, anyone else have breast inflammation associated with their lupus?
Michelle in CA