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Old 07-08-2008, 08:16 PM   #1
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bonniesmith60 HB User
lupus

I was told I need to stay out of the heat because it is dangerous for me. I opted not to take any medications because of the side affects. But what are the exact reasons not to be in the heat or sun. And what are the symptoms of flare ups. THere are times when I feel like my body is shutting down for good. I can't even begin to explain how bad I feel all of the time. I really don't ever feel good. Pleases respond so I can have a better understanding of the do's and don'ts Thank You Bonnie

 
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Old 07-09-2008, 11:01 AM   #2
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Re: lupus

Quote:
Originally Posted by bonniesmith60 View Post
I was told I need to stay out of the heat because it is dangerous for me. I opted not to take any medications because of the side affects. But what are the exact reasons not to be in the heat or sun. And what are the symptoms of flare ups. THere are times when I feel like my body is shutting down for good. I can't even begin to explain how bad I feel all of the time. I really don't ever feel good. Pleases respond so I can have a better understanding of the do's and don'ts Thank You Bonnie
Hi Bonnie and welcome to this board. Have you been dx with Lupus? Not an expert but from reading on this threads I've learned that being in the sun even for a small period of time can cause you to get face or body rashes which could turn pretty painfull and also on some people it causes painful blisters. I think that you should reconsider taking some kind of medication for your symptoms, from what you are saying it sounds like you are in alot of pain, what r ur symptoms? I'm sure you will get more responses from the other lupies here that will answer your questions better. Take care and get well soon

 
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Old 07-09-2008, 11:21 AM   #3
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Re: lupus

Bonnie, I really recommend going to your library & borrowing some books on lupus. Dr. Daniel Wallace has a great hardcover; also Dr. Robert Lahita covers much the same ground.

Just curious: which med(s) did you refuse? I think you should read what these experts write on the risks of the disease vs. the risks of the meds. Personally, I was a little concerned about Plaquenil, that is until my rheumie dispelled my concerns & I also read what Dr. Wallace wrote on the subject.

Take care,
Vee

 
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